Table 1.
Aggregated list of potential patient identifiers in datasets
| Identifier (information sources) | Comments |
|---|---|
| Direct | |
| Name [9-16] | |
| Initials [14] | |
| Address, including full or partial postal code [9-16] | |
| Telephone or fax numbers or contact information [9,11,13,16] | |
| Electronic mail addresses [9] | |
| Unique identifying numbers [9-16] | Generalised HIPPA item 7-10, 18 |
| Vehicle identifiers [9] | |
| Medical device identifiers [9] | |
| Web or internet protocol addresses [9] | |
| Biometric data [9] | |
| Facial photograph or comparable image [9,11,12,14] | |
| Audiotapes [12] | |
| Names of relatives [11] | |
| Dates related to an individual (including date of birth) [9,10,12,16] | |
| Indirect--may present a risk if present in combination with others in the list | |
| Place of treatment or health professional responsible for care [11,16] | Could be inferred from investigator affiliations |
| Sex [10] | |
| Rare disease or treatment [11] | |
| Sensitive data, such as illicit drug use or "risky behaviour" [16] | |
| Place of birth [11,16] | |
| Socioeconomic data, such as occupation or place of work, income, or education [10,11,13,16] | MRC requirement is for "rare" occupations only |
| Household and family composition [16] | |
| Anthropometry measures [16] | |
| Multiple pregnancies [16] | |
| Ethnicity [10] | |
| Small denominators--population size of <100 [15] | |
| Very small numerators--event counts of <3 [15] | |
| Year of birth or age (this article) | Age is potentially identifying if the recruitment period is short and is fully described |
| Verbatim responses or transcripts [16] | |