Table 5.
Question | Rating, % |
---|---|
What would you like to see as part of an end-of-life care program for patients dying with kidney disease? | |
Education and support for patients and their families | 47.8 |
Greater family involvement in end-of-life care discussions and care | 45.4 |
A greater focus on pain and symptom management | 42.1 |
Education and training for all staff on end-of-life care for kidney failure patients | 35.1 |
Greater physician involvement in end-of-life care discussions and care | 32.4 |
Routine discussions with patients regarding their end-of-life preferences | 31.7 |
Resources available on palliative care options (e.g., pastoral, hospice care) | 27.2 |
Greater involvement of nursing and social work staff in end-of-life care discussions and care | 22.6 |
Use of a palliative care team | 19.9 |
Greater emphasis on spiritual care | 13.4 |
Greater access to hospice services | 10.6 |
Othera | 2.8 |
Annual memorial service for patients who have died | 2.7 |
What issues surrounding end-of-life care would you like to know more about? | |
Information about the end-of-life process | 42.3 |
Information about palliative care services | 39.7 |
Symptom management (e.g., alleviation of pain) | 39.2 |
Information about hospice | 29.1 |
Financial support for individuals in need | 25.5 |
Availability of services such as counselling, support groups | 23.8 |
Availability of resources specifically in your community | 21.9 |
Conflicting beliefs about care when a cure is no longer possible | 15.8 |
Results do not include responses that were not applicable or were missing but percentage was calculated from N = 584.
Other end-of-life care aspects specified by patients were burial options and plans, wills, and better emotional and spiritual support.