Table 1.

Predictive testing for Huntington's disease

Session one
- Sociodemographic details
- Confirmation of family and clinical data
- Assessment of impact of HD and test results
- Assessment of knowledge of HD and presymptomatic testing
- Reasons for requesting prediction
- Neurological examination*
Session two
- Assessment of psychological, personality and social resources (using standardized instruments*)
- Further counselling and discussion on disclosure session
- Nomination of professional support
- Signing of consent form
- Final blood sample
Session three
- Disclosure of test results
Formal follow-up
- 2 days-1 week (telephone)
- 3 months
- 12 months

* Genetic centres differ in the application of neurological examination and psychological assessment