Table 4.
Therapy dependency item | Prospective scores |
Retrospective scores |
Comparison |
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Median (IQR) | Range | Median (IQR) | Range | Wilcoxon Z-value | P-value | Spearman rho | P-value | Weighted kappa | Level of agreement | |
1) Medical management | 2 (2–3) | 0–4 | 2 (1–3) | 0–4 | −1.61 | 0.11 | 0.50 | <0.0001 | 0.40 | Fair |
2a) Splinting/orthotics upper limb | 1 (0–3) | 0–4 | 0 (0–2) | 0–4 | −1.27 | 0.21 | 0.79 | <0.0001 | 0.63 | Substantial |
2b) Splinting/orthotics lower limb | 1 (0–2) | 0–3 | 1 (0–2) | 0–3 | −0.47 | 0.64 | 0.45 | <0.0001 | 0.40 | Fair |
3) Seating/wheelchair | 2 (1–2) | 0–4 | 2 (1–2) | 0–4 | −1.18 | 0.24 | 0.63 | <0.0001 | 0.48 | Moderate |
4) Physical therapy | 3.5 (3–4) | 0–4 | 3.5 (3–4) | 0–4 | −0.25 | 0.81 | 0.24 | 0.08 | 0.28 | Fair |
5) Trachestomy management | 0 (0–0) | 0–0 | 0 (0–0) | 0–0 | 0.00 | 1.00 | N/Aa | N/A | N/A | N/A |
6) Swallowing | 0 (0–0) | 0–3 | 0 (0–0) | 0–4 | −1.07 | 0.29 | 0.75 | <0.0001 | 0.64 | Substantial |
7) Nutrition | 1 (0–2) | 0–4 | 1 (0–2) | 0–4 | −2.23 | 0.03 | 0.47 | <0.0001 | 0.43 | Moderate |
8) Supported communication | 0 (0–0) | 0–4 | 0 (0–0) | 0–2 | −0.81 | 0.42 | 0.73 | <0.0001 | 0.48 | Moderate |
9) Speech and language interventions | 2 (0–3) | 0–4 | 2 (0–3) | 0–4 | −0.91 | 0.37 | 0.90 | <0.0001 | 0.77 | Substantial |
10) Personal/self-care | 2 (2–2) | 0–4 | 2 (1–2) | 0–4 | −1.18 | 0.24 | 0.49 | <0.0001 | 0.35 | Fair |
11) Domestic/community- based activities | 2 (0–2) | 0–4 | 1 (0–2) | 0–4 | −1.62 | 0.10 | 0.29 | 0.04 | 0.29 | Fair |
12) Vocational/leisure/ computers/driving | 2 (0–2) | 0–3 | 2 (0–2) | 0–4 | −0.69 | 0.49 | 0.37 | <0.0001 | 0.34 | Fair |
13) Cognitive interventions | 0 (0–2) | 0–4 | 0 (0–1) | 0–4 | −1.19 | 0.23 | 0.45 | <0.0001 | 0.47 | Moderate |
14) Behavioural management | 0 (0–0) | 0–4 | 0 (0–0) | 0–4 | −1.29 | 0.20 | 0.67 | <0.0001 | 0.61 | Substantial |
15) Emotional/mood | 1 (0–2) | 0–4 | 2 (0–2) | 0–4 | −0.84 | 0.40 | 0.67 | <0.0001 | 0.66 | Substantial |
16) Formal family support | 0 (0–1) | 0–4 | 0 (0–1) | 0–4 | −0.31 | 0.76 | 0.46 | <0.0001 | 0.39 | Fair |
17) Emotional load on staff | 0 (0–2) | 0–4 | 0 (0–2) | 0–4 | −0.46 | 0.65 | 0.66 | <0.0001 | 0.52 | Moderate |
18) Planning discharge/housing/ care package | 2 (1–3) | 0–4 | 1 (0–3) | 0–4 | −0.63 | 0.53 | 0.46 | <0.0001 | 0.41 | Moderate |
19) Benefits and finances | 1 (1–2) | 0–3 | 1 (1–2) | 0–4 | −0.13 | 0.90 | 0.55 | <0.0001 | 0.50 | Moderate |
20) Equipment/adaptation for home | 1 (0–2) | 0–4 | 0 (0–2) | 0–3 | −2.95 | 0.003 | 0.42 | <0.0001 | 0.31 | Fair |
21) Community/home visits | 0 (0–3) | 0–4 | 0 (0–2) | 0–4 | −1.71 | 0.09 | 0.38 | 0.006 | 0.38 | Fair |
22) Key-working | 2 (1–2) | 0–4 | 2 (1–2) | 1–3 | −1.19 | 0.24 | 0.35 | 0.012 | 0.31 | Fair |
23) Multidisciplinary meetings | 2 (0–2) | 0–2 | 2 (0–2) | 0–2 | 0.00 | 1.00 | 0.77 | <0.0001 | 0.77 | Substantial |
24) Reports | 1 (0–1) | 0–2 | 0 (0–2) | 0–2 | −2.51 | 0.012 | 0.59 | <0.0001 | 0.50 | Moderate |
25) Groups/extra therapies | 2 (2–2) | 0–2 | 2 (2–2) | 0–2 | −0.56 | 0.57 | 0.35 | 0.012 | 0.30 | Fair |
26) Clinics | 0 (0–2) | 0–2 | 0 (0–2) | 0–2 | −0.63 | 0.53 | 0.60 | <0.0001 | 0.60 | Moderate |
Subscale scores | ||||||||||
Physical subscale | 9.5 (8–11) | 3–15 | 9.5 (7–11.5) | 3–16 | −1.76 | 0.08 | 0.71 | <0.0001 | 0.52 | Moderate |
Basic functions | 4 (1–5.5) | 0–9 | 3 (2–5) | 0–8 | −1.57 | 0.12 | 0.81 | <0.0001 | 0.54 | Moderate |
ADL | 5 (3–6) | 1–9 | 4 (2–6) | 1–10 | −2.01 | 0.05 | 0.44 | <0.001 | 0.29 | Fair |
Cognitive | 2 (1–6) | 0–16 | 3 (1–6) | 0–13 | −0.57 | 0.57 | 0.64 | <0.0001 | 0.55 | Moderate |
Discharge planning | 7 (5–9.5) | 1–15 | 6 (4–8) | 1–13 | −2.53 | 0.011 | 0.53 | <0.0001 | 0.31 | Fair |
Indirect interventions | 4 (3.5–6) | 2–8 | 4 (3–6) | 0–8 | −0.74 | 0.46 | 0.55 | <0.0001 | 0.44 | Moderate |
Total NPTDA | 35 (28–38.5) | 16–45 | 30 (26.6–35.5) | 18–43 | −3.30 | <0.001 | 0.61 | <0.0001 | 0.38 | Fair |
In this particular series, unlike the earlier one, no patient had a tracheostomy.