Table 1.
—Baseline Characteristics of Patients Seen at Cystic Fibrosis Foundation-Accredited US Care Centers, 2003
| Characteristic | Adults (≥ 18 y) | Children (< 18 y) |
| Demographic data | ||
| Person-years | 8,625 | 12,881 |
| Sex, % female | 4,044 (46.9) | 6,275 (48.7) |
| Insurance status | ||
| Private/HMO | 4,767 (55.3) | 6,456 (50.1) |
| Public | 3,402 (39.4) | 6,161 (47.8) |
| No insurance | 287 (3.3) | 161 (1.3) |
| Other/unknown | 169 (2.0) | 103 (0.8) |
| Median zip code income (IQR) | 44,323.5 (35,609-56,393) | 42,998 (34,750-56,408) |
| Race/ethnicity | ||
| Non-Hispanic white | 8,000 (92.8) | 11,094 (86.1) |
| Non-Hispanic black | 224 (2.6) | 575 (4.5) |
| Hispanic | 313 (3.6) | 1,042 (8.1) |
| Other/unknown | 88 (1.0) | 170 (1.3) |
| Health care use | ||
| Total outpatient visits, median (IQR) | 4 (1-7) | 4 (2-6) |
| Total hospital admissions, median (IQR) | 0 (0-1) | 0 (0-1) |
| Clinical data | ||
| FEV1, L, mean (SD) | 2.3 (1.0) | 1.9 (0.8) |
| FEV1, % predicted, mean (SD) | 60.8 (23.9) | 86.8 (20.8) |
| FVC, L, mean (SD) | 3.3 (1.1) | 2.3 (1.0) |
| FVC, % predicted, mean (SD) | 74.6 (20.7) | 93.6 (18.2) |
| FEV1 > 50% predicted | 5,153 (63.7) | 8,242 (93.7) |
| Height-weight above US mean | 414 (5.0) | 5,242 (44.8) |
| Pancreatic insufficiency | 7,460 (86.5) | 12,018 (93.3) |
| Pseudomonas aeruginosa culture positive | 5,903 (77.8) | 5,455 (44.6) |
| Burkholderia cepacia culture positive | 398 (5.3) | 211 (1.7) |
| Staphylococcus aureus culture positive | 3,041 (40.1) | 7,106 (58.2) |
Baseline data are for the 2003 calendar year. Data are presented as No. (%) unless otherwise specified. CF = cystic fibrosis; HMO = health maintenance organization; IQR = interquartile range.