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. 2010 Mar 9;12(1):e7. doi: 10.2196/jmir.1215

Table 2.

Coding schemes for story topics and writer profile

Search Facility Coding Scheme
Story topics (domains)
Diagnosis Feelings about diagnosis
Treatment Decision-making about treatment: (1) having no choice, (2) breast conserving surgery or mastectomy?, (3) adjuvant treatment or not?, (4) reconstruction or not?, (5) prophylactic mastectomy of other breast, (6) ovary removal, (7) other
Coping with treatment
Treatment side effects:(1) arm lymphedema, (2) hair loss, (3) fatigue, (4) nerve pain, (5) hot flashes, (6) skin problems, (7) other
Health care system Delay in/errors at diagnosis
Waiting for test results
Contact with medical staff: (1) support, (2) lack of understanding
How treatment was performed: (1) satisfied, (2) dissatisfied
Second opinion
Living with it Work and insurances
Family and friends: (1) support, (2) lack of understanding, (3) talking with and worrying about
Body image and sexuality: (1) (partly) missing a breast, (2) partner’s reaction
Pregnancy issues: (1) pregnant at diagnosis, (2) wanting to become pregnant after treatments
Coping with breast cancer: (1) thinking (emotional-focused coping), (2) doing (problem-focused coping)
Practical advices
Concerns about heredity
Coping with metastasized breast cancer
Writer profile (personal characteristics)
Age at diagnosis Number of years
Time since diagnosis Number of months
Partner (1) No, (2) yes
Children (1) No, (2) yes
Treatment received (1) Breast conserving therapy, (2) mastectomy, (3) radiation therapy, (4) chemotherapy, (5) hormonal therapy, (6) immuno therapy (herceptin), (7) breast reconstruction, (8) lymph node dissection
Phase in the course of disease (1) In first treatment period, (2) free of cancer, (3) cancer for second time, (4) metastasized cancer, (5) passed away