Table 2.
Coding schemes for story topics and writer profile
| Search Facility | Coding Scheme | |
| Story topics (domains) | ||
| Diagnosis | Feelings about diagnosis | |
| Treatment | Decision-making about treatment: (1) having no choice, (2) breast conserving surgery or mastectomy?, (3) adjuvant treatment or not?, (4) reconstruction or not?, (5) prophylactic mastectomy of other breast, (6) ovary removal, (7) other | |
| Coping with treatment | ||
| Treatment side effects:(1) arm lymphedema, (2) hair loss, (3) fatigue, (4) nerve pain, (5) hot flashes, (6) skin problems, (7) other | ||
| Health care system | Delay in/errors at diagnosis | |
| Waiting for test results | ||
| Contact with medical staff: (1) support, (2) lack of understanding | ||
| How treatment was performed: (1) satisfied, (2) dissatisfied | ||
| Second opinion | ||
| Living with it | Work and insurances | |
| Family and friends: (1) support, (2) lack of understanding, (3) talking with and worrying about | ||
| Body image and sexuality: (1) (partly) missing a breast, (2) partner’s reaction | ||
| Pregnancy issues: (1) pregnant at diagnosis, (2) wanting to become pregnant after treatments | ||
| Coping with breast cancer: (1) thinking (emotional-focused coping), (2) doing (problem-focused coping) | ||
| Practical advices | ||
| Concerns about heredity | ||
| Coping with metastasized breast cancer | ||
| Writer profile (personal characteristics) | ||
| Age at diagnosis | Number of years | |
| Time since diagnosis | Number of months | |
| Partner | (1) No, (2) yes | |
| Children | (1) No, (2) yes | |
| Treatment received | (1) Breast conserving therapy, (2) mastectomy, (3) radiation therapy, (4) chemotherapy, (5) hormonal therapy, (6) immuno therapy (herceptin), (7) breast reconstruction, (8) lymph node dissection | |
| Phase in the course of disease | (1) In first treatment period, (2) free of cancer, (3) cancer for second time, (4) metastasized cancer, (5) passed away | |