Table 2.
Objective and subjective clinical characteristics of the 20 caregiver and 20 care recipient participants.
| Subjective and Objective measures of burden | Statistics mean (range) ± SD |
|---|---|
| DRS2, mean [CI α = 0.05] | 95 [83-107] (35-130) ± 25 |
| BADLS Total, mean [CI α = 0.05] | 7.6 [7-8] (4-10) ± 1.8 |
| Care Recipient Age at Diagnosis, | 74 (53-90) ± 9 |
| Formal Diagnosis, Yes/No | N (%) 18 (90)/2 (10) |
| Measures of Carer Burden | |
| GHQ-30, mean [CI α = 0.05] scoring 5 or more | 8 [5-12] (0-27) ± 7 N (%) 13 (65) |
| CCL-CR Behaviour where max possible = 52 | 19 (8-37) ± 8 |
| CCL-Carer stress where max possible = 52 | 15 (3-32) ± 8 |
| CCL-Overall burden | 3 (2-5) ± 1 |
| CCL-Physical burden | 3 (1-5) ± 1 |
| CCL-Emotional burden | 4 (1-5) ± 1 |
| CCL-Financial burden | 2 (1-5) ± 1 |
| CCL-Social burden | 3 (1-5) ± 1 |
| CCL-Carer rated stress by service needs | 2 (0-8) ± 3 |
| Services Provided | |
| Total out of home respite hours over 3 months receiving ANY hrs | 52 (0-294) ± 72 N (%) 14 (70) |
| Total in home respite over 3 months receiving ANY hrs | 29 (0-119) ± 34 N (%) 11 (55) |
| Total practical help over 3 months receiving ANY hrs | 22 (0-125) ± 32 N (%) 12 (60) |
| CCL-carer feels need more from services | 3 (0-8) ± 2 |
| Need more help from services than I am given - yes, | N (%) 13 (65) |
| Need more information than I am given - yes, | N (%) 8 (40) |
| Services should work together & communicate more - yes | N (%) 10 (50) |
| Need better access to services - yes | N (%) 11 (55) |