Table 1.
Tool | Name of tool | Available at/from: | Description | Included in assessment (Y/N) |
---|---|---|---|---|
Multimedia | ||||
1 |
|
http://www.aurorahealthcare.org/services/cancer/geneticcounseling/screening-tool.asp, accessed December 2008 | Web tool assessing family history risk for hereditary cancers. | Y – table 2 and 3 |
2 |
|
https://family.case.edu/, accessed August 4, 2008. See also Acheson et al. (2006) [31] | Computer tool that collects and displays family history of cancer. | Y – table 2 |
3 |
|
Available from developer, accessed September 2008 | Computer tool assessing family history risk for 6 diseases: coronary heart disease, stroke, diabetes, and colon, breast and ovarian cancer. | Y – table 2 |
4 |
|
http://www.dana-farber.org/pat/cancer/gastrointestinal/crc-calculator/default.asp, accessed December 2008 | Web tool assessing risk for Lynch syndrome. | N – risk assessment for Lynch syndrome, not focused on family history. |
5 |
|
See Skinner et al. (2005) [32] | Touchscreen, tablet computer to assess risk for breast, ovarian, and colorectal cancers. | N – risk assessment for cancer, not focused on family history. |
6 |
|
http://www.familyaware.org/familytree/, accessed December 2008 | Web tool to collect family health history information. Targets mental health. | Y – table 2 |
7 |
|
http://www.diseaseriskindex.harvard.edu/update/, accessed December 2008 | Web tool assessing risk for developing 5 diseases: cancer, diabetes, heart disease, osteoporosis, and stroke. | N – health risk appraisal tool, not focused on family history. |
8 |
|
http://www.realage.com/health_guides/BreastCancer/introduction.asp, accessed December 2008 | Web tool assessing risk for breast cancer. | N – general risk assessment for breast cancer, not focused on family history. |
9 |
|
See Ozanne et al. (2009) [13] | Computerized system to identify women at risk for hereditary breast/ovarian cancer. | N – developed for use in primary care offices and risk assessment clinics. Targets physicians/health care providers. |
10 |
|
http://appl.unmc.edu/gencancer/, accessed August 28, 2008 | Web tool assessing family history risk for cancer. | Y – table 2 |
11 |
|
http://www.myriadtests.com/cancerhistory.htm, accessed August 4, 2008 | Web tool to collect information on family history of cancer. | Y – table 2 |
12 |
|
https://mygenerations.enh.org/enhweb/newuser.asp, accessed August 28, 2008 | Web tool assessing family history risk for cancer. | Y – table 2 |
13 |
|
http://www.norwichunion.com/healthtree/index.htm, accessed August 4, 2008 | Web tool to collect family health history information. | Y – table 2 |
14 |
|
See Westman et al. (2000) [33] | Computer touchscreen kiosk tool to collect family history of cancer. | N – developed for use in hospital system. |
15 |
|
http://www.jamesline.com/patientsandvisitors/prevention/cancergenetics/, accessed August 28, 2008. See also Kelly et al. (2008) [34] | Web tool assessing family history risk for cancer and coronary heart disease (CHD). | Y – table 2 |
16 |
|
http://www.hmc.psu.edu/cancer/outreach_education/community/cancerriskassessments/cancer_risk_assessment.htm, accessed December 2008 | Web tool assessing risk for colon cancer. | Y – table 2 |
17 |
|
http://www.itrunsinmyfamily.com/, accessed June 2009 | Web family pedigree tool to collect family history information. | Y – table 2 |
18 |
|
https://familyhistory.hhs.gov/, accessed May 26, 2009 | Web tool that collects family history for 6 diseases: coronary heart disease, stroke, diabetes, and colon, breast and ovarian cancer. | Y – table 2 |
19 |
|
See Braithwaite et al. (2005) [35] | Prototype computerized hereditary breast cancer risk assessment tool. | N – developed for use in clinical setting. |
20 |
|
https://www.afcri.upenn.edu:8022/itacc/penn2/index.asp, accessed December 2008 | Web tool assessing risk for BRCA1 or BRCA2 mutations. | N – risk assessment for BRCA mutation status, not focused on family history. |
21 |
|
http://www.healthsystem.virginia.edu/internet/phs/HealthHeritage/home.cfm, accessed August 4, 2008. See also Kinze et al. (2002) [36] | (Demo) Web tool assessing family history risk for 89 health conditions. | Y – table 2 |
Websites | ||||
22 |
|
http://www.adhdsupport.com/adhd-evaluation-tool.aspx, accessed December 2008 | Web page detailing how to collect family history of symptoms or diagnoses related to ADHD. Includes a family history tree for collecting information. | Y – table 2 and 3 |
23 |
|
http://www.genetics.com.au/fhh/fhhhome.htm, accessed June 2009 | Web site detailing the importance of family history and how to collect family history information. Includes a form (My Family Health Record) for collecting family history. | Y – table 2 and 3 |
24 |
|
http://www.genomecenter.howard.edu/community/CollectYourFamilyHealthHistory.htm, accessed December 2008 | Web page detailing how to collect family health history information. | Y – table 2 |
25 |
|
http://www.marchofdimes.com/gyponline/index.bm2, accessed December 2008 | Web site providing information and resources on integrating genetics into patient care. Includes information on how to collect a family health history. | N – targets physicians/health care providers. |
26 |
|
http://www.mayoclinic.com/health/medical-history/HQ01707, accessed August 4, 2008 | Web page detailing how to collect family health history information. | Y – table 2 |
27 |
|
http://www.nsgc.org/consumer/familytree/index.cfm, accessed August 4, 2008 | Web page detailing how to collect family health history information. | Y – table 2 |
28 |
|
http://www.americanheart.org/presenter.jhtml?identifier=3059464, accessed December 2008 | Family history tree for mapping out family health history. Targets heart disease among women. | Y – table 2 and 3 |
29 |
|
http://www.americanheart.org/presenter.jhtml?identifier=3044888, accessed December 2008 | Family history tree for mapping out family health history. Targets diabetes and related conditions. | Y – table 3 |
30 |
|
http://www.americanheart.org/presenter.jhtml?identifier=3056055, accessed December 2008 | Family history tree for mapping out family health history. Targets stroke and high blood pressure. | Y – table 3 |
31 |
|
http://www.ama-assn.org/ama/pub/category/2380.html, accessed August 25, 2008 | Questionnaire to collect family history information. | Y – table 3 |
32 |
|
http://www.ama-assn.org/ama/pub/category/2380.html, accessed August 4, 2008 | Booklet detailing the importance of family history and the ‘red flags’ for inherited conditions. Includes information on how to collect a family health history. | N – targets physicians/health care providers. |
33 |
|
http://www.ashg.org/press/consumers.shtml#4, accessed August 4, 2008 | Fact sheet describing how to collect a family health history and draw a family tree. | Y – table 2 |
34 |
|
See Murffetal. (2007) [37] | Form to collect family history of cancer and other diseases. | N – not available in article. |
35 |
|
http://www.cdc.gov/genomics/public/famhix/fs.htm, accessed August 28, 2008 | Fact sheet detailing the importance of family history and how to learn about own family history. | Y – table 2 |
36 |
|
See Gilpin et al. (2000) [38] | Tool to record family history of cancer. | N – risk assessment tool targeting physicians/health care providers. |
37 |
|
http://www.cincinnatichildrens.org/svc/alpha/h/hereditary-cancer/visit/before.htm, accessed August 28, 2008 | Brochure describing how to collect family health history. | Y – table 2 |
38 | Comenius University | See Hlavaty et al. (2005) [39] | Questionnaire to collect family history of colorectal cancer. | N – not available in article. |
39 |
|
See Grover et al. (2004) [40] | Questionnaire to collect family history of cancer. | N – not available in article. |
40 |
|
http://www.geneticalliance.org/ws_display.asp?filter=ccfhh, accessed August 28, 2008 | Customizable booklet detailing how to collect family health history information. | Y – table 2 |
41 |
|
http://geneticalliance.org/ws_display.asp?filter=ccfhh, accessed August 4, 2008 | Questionnaire to collect family history information. | Y – table 2 and 3 |
42 |
|
http://geneticalliance.org/ws_display.asp?filter=ccfhh, accessed August 4, 2008 | Questionnaire to collect family history information. Information available for healthcare provider on how to use family history to determine risk. | N – targets physicians/health care providers. |
43 |
|
http://www.genetests.org/servlet/access?id=88888928&key=Cdbs0RTAjlynd&fcn=y&fw=AO5o&filename=/tools/concepts/checklist.html, accessed September 25, 2008 | Checklist to track diseases in the family. | Y – table 3 |
44 |
|
http://www.genetests.org/servlet/access?id=8888892&key=CFY3dMa06Ml4r&fcn=y&fw=7x1-&fllename=/tools/concepts/medHist.html, accessed September 25, 2008 | Questionnaire to collect family history information. | Y – table 3 |
45 |
|
http://www.heartlandfamilyhistory.org/familyhistorytools.htm, accessed September, 2008 | Toolkit detailing how to collect family health history. | Y – table 2 |
46 |
|
See Eerola et al. (2000) [41] | Questionnaire to collect family history of breast and ovarian cancer. | N – not available in article. |
47 |
|
National Human Genome Center, Howard University | Booklet developed for African Americans detailing how to collect, use and share family history information. Includes a family history tree for collecting information. | Y – table 2 and 3 |
48 |
|
See Cole etal. (1978) [42] | Questionnaire to collect family history information. | Y – table 3 |
49 |
|
www.culturalpartnerships.org/documents/DoesItRun.pdf accessed December 2008 | Booklet detailing how to collect family history information. | N – similar to Genetic Alliance Tool that was included. |
50 |
|
http://www.lahey.org/Medical/FCRAC/FCRAC_FI_FHT.asp, accessed December 2008 | Packet including questionnaires for collecting family history of cancer. | Y – table 2 and 3 |
51 | Leiden University Medical Centre | See de Jong et al. (2006) [43] | Questionnaire to collect family history of colorectal cancer. | N – not available in article. |
52 |
|
http://www.marchofdimes.com/pnhec/4439_1109.asp, accessed August 4, 2008 | Preconception/prenatal questionnaire to collect family history information. | Y – table 2 and 3 |
53 |
|
See Hughes et al. (2003) [44] | Questionnaire to collect family history of breast and ovarian cancer. | N – not available in article. |
54 |
|
See Green et al. (2007) [45] | Questionnaire to collect family history of colorectal cancer. | N – not available in article. |
55 |
|
http://www.cdc.gov/pcd/issues/2005/apr/pdf/04_0134_01.pdf accessed August 25, 2008. See also Theisen (2005) [22] | Handout that includes a worksheet to collect family history information on high blood pressure, heart disease, and stroke. | Y – table 2 and 3 |
56 |
|
http://www.migeneticsconnection.org/factcards.shtml, accessed December 2008 | Fact sheet detailing how to collect family history information. | Y – table 2 |
57 |
|
See Fisher et al. (2003) [46] | Questionnaire to collect family history of breast cancer. | Y – table 2 and 3 |
58 |
|
http://pa.nchpeg.org/, accessed August 4, 2008 | Questionnaire to collect family history information. | Y – table 3 |
59 | New York Hospital-Cornell Medical Center, Strang Cancer Prevention Center | See Breuer etal. (1993) [47] | Form to collect family history of cancer. | N – not available in article. |
60 |
|
http://www.health.state.ny.us/nysdoh/cancer/obcancer/appendll.htm, accessed December 2008 | Questionnaire to collect family history of cancer. | Y – table 3 |
61 | Northwestern University | See Frezzo et al. (2003) [48] | Questionnaire to collect family history information. | N – not available in article. |
62 | Ontario Cancer Institute | See Theisetal. (1994) [49] | Questionnaire to collect family history information. | N – not available in article. |
63 |
|
http://orders.asapmail.com/sqlimages/crpf/preventable%20cancer%20guide%209-07.pdf accessed December 18, 2008 | Booklet that includes a family history medical chart/tree to collect family history information. | Y – table 2 and 3 |
64 |
|
See Armel et al. (2009) [50] | Questionnaire to collect family history of cancer. | Y – table 2 and 3 |
65 | Royal Melbourne Hospital, Familial Cancer Centre | See Gaffetal. (2004) [51] | Questionnaire to collect family history of prostate cancer. | N – not available in article. |
66 |
|
http://www.hhs.gov/familyhistory/order.html, accessed August 28, 2008 | Questionnaire to collect family history information. | Y – table 2 and 3 |
67 |
|
See House etal. (1999) [52] | Questionnaire to collect family history of colorectal cancer. | Y – table 3 |
68 |
|
See Leggatt et al. (1999, 2000) [53, 54] | Questionnaire to collect family history of cancer. | N – not available in article. |
69 |
|
See MacLeod et al. (2008) [55] | Questionnaire to collect family history of cardiovascular disease. | Y – table 2 and 3 |
70 |
|
http://www.cahs.uc.edu/gc/FamilyHistoryProject.htm, accessed September 2008 | Fact sheet describing how to collect a family health history. | Y – table 2 |
71 | University of Hawaii | See Glanzetal. (1999) [56] | Questionnaire to collect family history of cancer focusing on colorectal cancer. | N – not available in article. |
72 |
|
See Benjamin et al. (2003) [57] | Questionnaire to collect family history of cancer. | N – targets physicians/health care providers. |
73 |
|
See Qureshi et al. (2005) [58] | Questionnaire to collect family history information. | N – not available in article. |
74 | University of Queensland Medical School | See Aitken etal. (1995) [59] | Questionnaire to collect personal and family medical history of colorectal cancer. | N – not available in article. |
75 |
|
See Cohn et al. (2008) [60] | Brochure to facilitate the collection and recognition of hereditary breast and ovarian cancer syndrome. | Y – table 2 and 3 |
76 |
|
http://health.utah.gov/genomics/familyhistory/toolkit.html, accessed August 28, 2008 | Toolkit detailing how to collect family health history. Includes a family history tree for collecting information. | Y – table 2 and 3 |
77 |
|
See Quillin et al. (2006) [61] | Questionnaire to collect family history of cancer. | N – not available in article. |
78 |
|
See Hurt etal. (2001) [62] | Form to collect family history of cancer. | N – not available in article. |
Note: This table does not include tools that are known to be in development, unavailable from the developer, or part of electronic hospital record systems.