Table 2.
Questionnaire
| Question | Patient/parent answers |
|---|---|
| 1. How was your child’s posture/sitting prior to surgery? | |
| Very crooked; pelvis very tilted; sat with rib cage on hip | 4 |
| Very crooked with head and shoulders very forward | 6 |
| Moderately crooked | 4 |
| Minimally crooked; required help to sit up | 0 |
| No problem with sitting balance | 0 |
| 1a. How is your child’s posture/sitting balance at the follow-up compared to before surgery? | |
| Major improvement | 2 |
| Moderate improvement | 8 |
| Minimal improvement | 0 |
| Unchanged | 0 |
| 2. Did your child have difficulty using his arms and hands before surgery due to poor sitting balance? | |
| Yes | 14 |
| No | 0 |
| 2a. If yes, has this been changed by the surgery? | |
| Major improvement | 2 |
| Moderate improvement | 6 |
| Minimal improvement | 6 |
| Unchanged | 0 |
| 3. Was your child able to feed himself before surgery? | |
| Independent in feeding | 5 |
| Able to feed himself only with assistive devices | 9 |
| Only able to feed himself finger foods | 0 |
| Unable to feed himself | 0 |
| 3a. Compared to before surgery, is your child: | |
| Independent in feeding | 5 |
| Able to feed himself only with assistive devices | 5 |
| Only able to feed himself finger foods | 0 |
| Unable to feed himself | 4 |
| 4. Did your child have a problem with eating/digestion before surgery? | |
| Yes | 2 |
| No | 12 |
| 4a. If yes, has this changed by the surgery? | |
| Major improvement | 1 |
| Moderate improvement | 1 |
| Minimal improvement | 0 |
| No change | 0 |
| Worse | 0 |
| 5. Did your child have respiratory problems before surgery (i.e., frequent colds, pneumonia)? | |
| Yes | 9 |
| No | 5 |
| 5a. If yes, has this been changed by the surgery? | |
| Major improvement | 3 |
| Moderate improvement | 3 |
| Minimal improvement | 3 |
| Unchanged | 0 |
| Worse | 0 |
| 6. Compared to before surgery, is there any change in your child’s overall activity level during the day (e.g., going to school, reading, playing, etc.) | |
| Major improvement | 8 |
| Moderate improvement | 3 |
| Minimal improvement | 0 |
| Unchanged | 0 |
| Worse | 0 |
| 7. Did your child have a problem with pressure sores before surgery? | |
| Yes | 2 |
| No | 12 |
| 7a. If yes, has this been changed by the surgery? | |
| Major improvement | 2 |
| Moderate improvement | 0 |
| Minimal improvement | 0 |
| Unchanged | 0 |
| Worse | 0 |
| 8. Please rate the change in your child’s and your own quality of life since the surgery: | |
| For child | |
| Major improvement | 6 |
| Moderate improvement | 8 |
| Minimal improvement | 0 |
| Unchanged | 0 |
| Worse | 0 |
| For Parent | |
| Major improvement | 8 |
| Moderate improvement | 6 |
| Minimal improvement | 0 |
| Unchanged | 0 |
| Worse | 0 |
| 9. Overall, how would you rate the outcome of surgery? | |
| Very satisfactory | 11 |
| Satisfactory | 3 |
| Neither satisfactory nor unsatisfactory | 0 |
| Unsatisfactory | 0 |
| Very unsatisfactory | 0 |
| 10. If given the opportunity, would you want your child to have his scoliosis surgery over again? | |
| Yes, definitely | 12 |
| Probably | 2 |
| Unsure | 0 |
| No | 0 |
| 11. Would you recommend the surgery for others with DMD scoliosis? | |
| Yes, definitely | 12 |
| Probably | 2 |
| Unsure | 0 |
| No | 0 |