Appendix 2.
Questionnaire
| No. | Questions | Possible answers | Comment |
|---|---|---|---|
| 1 | How are you today? | Fine/very critical | Fine: continue with the interview; critical: discontinue interview, poss. call emergency doctor in acc. with interview guidelines |
| 2a | When were you released from the acute hospital? | Date of release | |
| 2b | Did you stay in a rehabilitation hospital after the acute hospital phase? | Yes/No | Yes: length of stay No: continue with 2c |
| 2c | Did you receive outpatient rehab treatment after the acute hospital phase? | Yes/No | Yes: length of stay |
| 3 | Did you experience complications following the operation? (Unsupported) | No/mild/serious/severe/special thrombosis | |
| 4 | How many different medications do you take per day? (How many tablets; capsules and injection) | Number of tablets/capsules; number of injections | |
| 5 | What medications did you receive following the operation and after leaving the acute treatment hospital? | Is an NMH injection named without prompting? (Yes/No) | |
| 6 | How often and when were you given or gave yourself these medications? | Daily NMH injection named without prompting? (Yes/No); if no: ask for LMWH directly | |
| 7 | Have you noticed side effects—direct or indirect—of your medications? If so; which? | Yes/No; when yes: details noted | Yes: follow with 8; No: follow with 9. |
| 8 | Did you do anything about the side effects? | Stopped taking medications? (Yes/No) In particular, stopped using LMWH (w/o prompting)? (Yes/No) |
Yes, stopped LMWH treatment: List number of days without it |
| 9 | Were there any medications where you had problems taking/ using them? If yes, with which? What did you do? | Difficulty using LMWH injections (w/o prompting)? (Yes/No) | Yes, list the following measures and days without LMWH treatment. |
| 10 | Do you sometimes forget to take your medications? If yes, with which medicine has this happened since your release from the acute hospital? | Forgot to take medications? (Yes/No) In particular, has LMWH been forgotten (w/o prompting)? (Yes/No) |
Yes, LMWH injection forgotten: How many days without LMWH? |
| 11 | Are you sometimes careless about taking medicine? If yes, with which medicine has this happened since your release from the acute hospital? | Carelessness? (Yes/No) In particular, not used LMWH injection (w/o prompting)? (Yes/No) |
Yes, not used LMWH injection: How many days without LMWH? |
| 12 | Do you sometimes decide against taking medications if you are feeling better or well? If yes, with which medications has this happened with and how often over the past weeks? | Decided against medicine while feeling improvement? (Yes/No) In particular, decided against LMWH injection (w/o prompting)? (Yes/No) |
Yes; decided against LMWH injection: How many days without LMWH? |
| 13 | Do you sometimes decide against taking medications if you are not feeling well? If yes, with which medications has this happened with and how often over the past week? | Decided against medicine while not feeling well? (Yes/No) In particular, decided against LMWH injection (w/o prompting)? (Yes/No) |
Yes; decided against LMWH injection: How many days without LMWH? |
| 14 | How many thrombosis syringes do you still have at home? | Number of syringes | |
| 15 | Did you also receive daily thrombosis injections during your stationary rehab treatment? If so, who gave them to you? Were there any days without injections? | Daily injections? (Yes/No) By whom? (Nurse/Patient); days without injection. | Question only for patients who had been in stationary rehab treatment |
| 16 | Before going to stationary rehab, did anyone recommend you inject yourself daily? If so, who injected you? | Linking: Recommended daily injection? (Yes/No) Who gave the injection? (doctor or nurse/family member/patient) |
Question only for patients with linking between acute and stationary rehabilitations treatment |
| 17 | Who supplied you with the syringes? How many? | Linking: origin of the injections? (hospital/outpatient prescription doctor/not get a prescription/prescription is not redeemed); Number of injections | Question only for patients with linking between acute and stationary rehabilitations treatment |
| 18 | Retrospectively and in your honest opinion, if you calculate from the day you left the acute treatment hospital to the day you entered rehab treatment, did you receive an injection every day? If not, why not? On how many days did you decide not to use an injection? | Daily LMWH injection? (Yes/No); list the reasons (bruises/ache/allergic reactions/blood/changes/other); Number of days without LMWH |
Question only for patients with linking between acute and stationary rehabilitations treatment |
| 19 | During your outpatient rehab treatment, did anyone recommend you use an injection every day? | Outpatient rehab: recommendation of daily injection? (Yes/No) Who gave the injection? | Question only for patients in outpatient rehabilitation |
| 20 | Who supplied you with the syringes? How many? | Outpatient rehab: origin of the injections? (hospital/outpatient prescription doctor/not get a prescription/prescription is not redeemed); Number of injections | Question only for patients in outpatient rehabilitation |
| 21 | Retrospectively and in your honest opinion, during your outpatient rehab treatment did you receive an injection every day? If not, why not? On how many days did you decide not to use an injection? | Daily LMWH injection? (Yes/No); list the reasons (bruises/ache/allergic reactions/blood/changes/other); Number of days without LMWH |
Question only for patients in outpatient rehabilitation |
| 22 | After your rehabilitation, did anyone recommend you use an injection every day? For how many days? Who injected you? | After rehabilitation: recommendation of daily injection? (Yes/No) Who gave the injection? (doctor or nurse/family member/patient) | Question only for patients with thrombosis prophylaxis need after inpatient rehabilitation |
| 23 | Who supplied you with the syringes? How many? | After rehabilitation: origin of the injections? (hospital/outpatient prescription doctor/not get a prescription/prescription is not redeemed); Number of injections | Question only for patients with thrombosis prophylaxis need after inpatient rehabilitation |
| 24 | Retrospectively and in your honest opinion, after your inpatient rehab treatment did you—despite mobility being good—receive a daily injection until the last recommended day? If not, why not? On how many days didn′t you receive an injection? | Daily LMWH injection? (Yes/No); list the reasons (bruises/ache/allergic reactions/blood/changes/other); Number of days without LMWH |
Question only for patients with thrombosis prophylaxis need after inpatient rehabilitation |
| 25 | After your acute hospital treatment: did anyone recommend you use an injection every day? For how many days? Who injected you? | Without rehab: recommendation of daily injection? (Yes/No) Who gave the injection(doctor or nurse/family member/patient) | Question only for patients without rehabilitation |
| 26 | Who supplied you with the syringes? How many? | Without rehabilitation: origin of the injections? (hospital/outpatient prescription doctor/not get a prescription/prescription is not redeemed); Number of injections | Question only for patients without rehabilitation |
| 27 | Retrospectively and in your honest opinion, after your acute hospital treatment did you—despite perhaps mobility being good—receive a daily injection until the last recommended day? If not, why not? On how many days didn’t you receive an injection? | Daily LMWH injection? (Yes/No); list the reasons (Bruises/ache/allergic reactions/blood/changes/other); Number of days without LMWH |
Question only for patients without rehabilitation |
| 28 | Following your operation were you afraid of suffering from a thickening of the blood or a thrombosis? | Extremely, very, moderately, not much, not at all | |
| 29 | In your opinion, how much does having thrombosis restrict a person in daily life? | Extremely, a lot, moderately, not much, not at all | If the answer to question 3 is especially thrombosis: asked for experience |
| 30 | In your opinion, how long does the treatment of thrombosis take? | Very long, long, moderate amount of time, little time, very little time | |
| 31 | Do you believe a person can avoid thrombosis by drinking a lot of liquids and moving a lot? | Extremely, very, moderately, not much, not at all | |
| 32 | Do you believe that medications against thrombosis give you good protection? | Extremely, very, moderately, not much, not at all | |
| 33 | What do you think is the more important measure against thrombosis: moving and drinking or taking/using medications? | Moving/drinking, medications, both (equally) | |
| 34 | Do you suffer from chronic diseases or handicaps? | Yes/No | Yes: Details |
| 35 | Do you live alone? | Alone/with partner/with children/other | |
| 36 | What education have you had? | University/vocational training/no postschool education/other |