Table 1.
Study participant characteristics
| Variable | Mean (SD)/Percentage |
|---|---|
| Age | M = 29.9 ± 9.7 years; Median = 26.5 years; Range = 18-70 years |
| Age of diagnosis | 5.8 (± 10.1) years; (76%; n = 658) diagnosed at ≤ 5 years of age |
| % Male | 46% |
| % Race | |
| Caucasian | 95% |
| African American | 2% |
| Hispanic | 2% |
| Other | 1% |
| % Education Levela | |
| Less than high school | 5% |
| High school graduate | 20% |
| Technical/Professional training | 6% |
| Some college/college student | 34% |
| College graduate | 24% |
| Have/working on graduate degree | 11% |
| % Marital Status | |
| Single (not currently dating) | 25% |
| Single (dating) | 15% |
| Serious relationship | 24% |
| Married | 36% |
| % Disease Severityb | |
| Normal (> 90 FEV1 % predicted) | 16% |
| Mild (70-90 FEV1 % predicted) | 24% |
| Moderate (40 - 69 FEV1 % predicted) | 29% |
| Severe (≤ 39 FEV1 % predicted) | 15% |
Note. aPatients between 18-24 may not have the ability to have higher education level based on age. Education level thus represents the highest degree achieved to date. bDisease severity was unknown for 16% of the patients.