Skip to main content
. 2010 Jan 15;13(6):368–377. doi: 10.1159/000276767

Table 1.

Focus Group Discussion Guide

  • 1

    What comes to mind when you think of genetic research data?

  • 2

    What might be some reasons that a person would participate in genetic research?

  • 3

    What might be some reasons that a person would not participate in genetic research?

  • 4

    How do you feel about participating in a genetic research study?

  • 5

    What kinds of information would you need to know before participating in a study to store and share your genetic research information?

  • 6

    If you agreed to participate in a study in which your genetic research information was stored in a database, what are your thoughts about sharing this data with other investigators?

  • 7

    How well do you think the privacy of individual genetic research data is protected?

  • 8

    What do you think the role of institutions and the government should be in protecting the privacy of those who participate in genetic research?