Table 4.

Sample participant responses to open ended survey questions

	Open-ended survey question
Participant demographics and increase in activation (Level & absolute PAM scores) from baseline to 6-month follow-up	Did you talk to your doctor about something you learned in a video or discussion about a video?	Did you and your doctor decide to make changes to your treatment?	As a result of something you learned, did you make any changes in what you do to treat your condition?
65 year-old African American female Baseline Activation Level: 4 6-month Follow-Up Level: 4 PAM Score: +23.1 points	I was not on a Statin and after watching the video I decided I wanted to take one to help lower my cholesterol. Also, I changed my PCP because I felt that my old PCP was too arrogant and didn't allow me to ask questions or give my input. So I told him that I did have every right to find a doctor that cares about my needs.	I asked about Statins and my new PCP agreed and I am now taking a Statin.	I took a class for Health Living at Kaiser.
65-year-old African American female Baseline Activation Level: 2 6-month Follow-Up Level: 4 PAM Score: +22.4 points	Yes, I talked to my doctor about changing my medication for my heart condition because it was making me feel really tired. I found out that my kidneys were not getting enough blood. Now that I changed the medication, I feel so much better.	I felt more informed and that I knew a little more about side effects to my medications. So I felt like I could have more input in my treatment plan.	Yes, I now ask more questions. I feel like I do have an important role in my care.
64-year-old African American female Baseline Activation Level: 2 6-month Follow-Up Level: 4 PAM Score: +35.4 points	We talked about my cholesterol meds and how they were making me feel. He switched me to another kind and now I don't feel as nauseous as I used to.	I asked my doctor that I wanted him to test me for diabetes. So next week I have a fasting test to take a look at my sugar levels. I feel much more empowered now because I learned so many things that now I write down questions before I see my doctor so that I don't forget.	Yes, I am walking more and testing my blood pressure at least once a day.
68-year old African American female Baseline Activation Level: 3 6-month Follow-Up Level: 4 PAM Score: +23.1 points	I mentioned to my doctor that I had seen a video on diabetes and that it really motivated me to exercise more. I asked him what exercises he could recommend for me. Also, I asked him about Statins and if I was taking one.	Yes, I found out I was taking a Statin already, but my doctor switched me to another med because I was feeling a bit nauseous with the other medication so I stopped taking it. And since I didn't know what it was for I forgot about it. But know that I learned that I should take a Statin I wanted to make sure I took one that did not upset my stomach.	Yes, I check my blood sugar more frequently. I even brought it with me during my vacation so that I can check my sugars here. I've never done that before. I also have been walking a lot during my trip so that I don't get lazy and stop.
82-year old Caucasian female Baseline Activation Level: 2 6-month Follow-Up Level: 4 PAM Score: +36.4 points	No	Yes, my doctor decided to put me on cholesterol medication. I told her I would, but that I wanted the lowest dosage and I made sure I found out what all side effects were before I started taking it. I told her I would take it for three months and see how much it lowered my cholesterol; if it did not lower it significantly then I would stop taking it and ask for something else.	I exercise a little more. Also, I make sure I take my list of questions to all my appointments.
87 year-old Caucasian male Baseline Activation Level: 4 6-month Follow-Up Level: 4 PAM Score: No change	No	No	I learned that it's alright to disagree with my doctor and to ask him questions if I'm not OK with what he wants me to do.