Table 2.
Attitudes of demonstration evaluation subjects toward sharing PCHR data for public health research
| Measure | Total No.(%) | Female No. (%) | Male No.(%) | Age ≤ 50 No.(%) | Age > 50 No. (%) | Student No.(%) | Non student No.(%) |
Poor Healthe | Good Healthf | |
| Agreeable to sharingd | 138 (91) | 71 (89) | 67 (94) | 51 (91) | 87 (92) | 21 (95) | 117 (91) | 13 (93) | 125 (91) | |
| Knows can share electronically | 61 (40) | 31 (39) | 30 (42) | 23 (41) | 38 (40) | 13 (59) | 48 (37) | 6 (43) | 55 (40) | |
| Of these, knows can share granularly | 43 (71) | 22 (71) | 21 (70) | 16 (70) | 27 (71) | 11 (85) | 32 (67) | 4 (67) | 39 (71) | |
| Preferred model for sharing | ||||||||||
| Sharing should be opt-in | 89 (59) | 50 (63) | 39 (55) | 31 (55) | 58 (61) | 8 (36) a | 81 (63) a | 81 (59) | 8 (57) | |
| Sharing should be opt-out | 54 (36) | 27 (34) | 27 (38) | 22 (39) | 32 (34) | 12 (55) a | 42 (33) a | 5 (36) | 49 (36) | |
| Conditions affecting sharing | ||||||||||
| Anonymity: increase willingness | 136 (90) | 73 (91) | 63 (89) | 54 (96) | 82 (86) | 21 (95) | 115 (89) | 12 (86) | 124 (91) | |
| Privacy not anonymity: decrease willingness |
107 (71) | 59 (74) | 48 (68) | 44 (79) | 63 (66) | 21 (95) | 111 (86) | 2 (14) | 17 (12) | |
| Share request came from trusted intermediary: increase willingness |
96 (64) | 46 (58) | 50 (70) | 29 (52) a | 67 (71) a | 11 (50) | 85 (66) | 9 (64) | 87 (64) | |
| Information only used for research: increase willingness | 106 (70) | 56 (70) | 50 (70) | 41 (73) | 65 (68) | 17 (77) | 89 (69) | 11 (79) | 95 (69) | |
| Can view audit trail of access and sharing: increase willingness | 119 (79) | 61 (76) | 58 (82) | 47 (84) | 72 (76) | 18 (82) | 101 (78) | 12 (86) | 107 (78) | |
| Payment for information: increase willingness |
44 (29) | 28 (35) | 16 (23) | 29 (52)c | 15 (16)c | 16 (73)c | 28 (22)c | 3 (21) | 41 (30) | |
| Contexts affecting sharing | ||||||||||
| Public health emergency: increase willingness |
125 (83) | 63 (79) | 62 (87) | 42 (75)a | 83 (87)a | 11 (50)c | 114 (88)c | 8 (57)a | 117 (85)a | |
a P < .05
b P < .01
c P < .001
dIncludes very, moderately and somewhat agreeable
eFair to poor self-rated health
fGood to excellent self-rated health