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. 2010 Aug 4;12(3):e32. doi: 10.2196/jmir.1355

Table 1.

Framework for PHR systems in underserved populations

Conceptual Level Constructs Guidelines Relating to the Underserved
Personal Health management
  • PHR systems in underserved communities need to address integrated care challenges and bolster continuity of care with proper assessment and maintenance of health outcomes.

  • PHR systems in underserved communities need to include patient education and encouragement toward services needed to engender preventive health maintenance behaviors.

Language and literacy
  • PHR systems in underserved communities need to feature multi-lingual capabilities.

  • PHR systems in underserved communities need to be explicitly attuned to limited levels of literacy, computer skills, and health information knowledge.

Privacy
  • Privacy and security features need to not only address HIPAA requirements, but also allay concerns unique to underserved populations and provide education on its importance.

Technical Infrastructure
  • Low-cost standardized means for effectively importing and exporting patient data across community clinic environments are needed to allow for low-cost architectural approaches.

  • Underlying the adoption of software systems, there is a need for basic technological infrastructure improvements in community provider settings.

User network
  • Computer experience and access is limited for the underserved, and, therefore, very user-friendly and publicly accessible interfaces need to be provided.

  • User access requires a range of modalities depending on the type of fixed and mobile access needs and requirements that occur at both the provider and user level.

  • Critical user locations such as emergency rooms require appropriately adapted and efficient interfaces.

Organizational Administration
  • As a majority of community health patient data is still paper-based, providers will need incentives to adopt new technologies.

  • Community health organizations need to introduce new workflow and patient communication practices to facilitate PHR use as a health self-management tool.

Adoption and integration
  • Community health organizations need increased financial support in order to boost adoption of PHRs and their role in integrated service delivery.

  • Hastening of easy-to-adopt PHR-related standards and applications is needed to reduce administrative overhead and hesitance toward adoption for patient activation.

Outreach
  • Increased efforts are needed to provide outreach and education that address the unique personal health management and communication needs of the underserved.

  • Caregivers need to be equally educated so that they can become true ambassadors of health information technologies and their importance.

Policy Funding and regulations
  • Health care reform of 2010 provides a major opportunity to extend PHR systems to underserved communities.

  • Federal ARRA of 2009 and related policies need to advance significant PHR requirements and incentives that are inclusive of underserved populations.

  • Federal ARRA of 2009 and related policies need to ensure that the privacy and confidentiality concerns of underserved communities are addressed.