Table 1.
Description of Patient and Family Member Participant Demographics
| Demographic characteristics | n (%) |
|---|---|
| Patients | 19 |
| Age (years) | 63 mean |
| 68 median | |
| 20–82 range | |
| Gender | |
| Female | 15 (78.9%) |
| Male | 4 (21.1%) |
| Race | |
| Black, non-Hispanic origin | 3 (15.8%) |
| White, non-Hispanic origin | 16 (84.2%) |
| Religion | |
| Protestant | 6 (31.6%) |
| Catholic | 8 (42.1%) |
| Muslim | 1 (5.2%) |
| Unknown | 4 (21.1%) |
| Primary Diagnosis | |
| New cancer diagnosis | 6 (31.6%) |
| (i.e., new diagnosis of liver cancer progressing to MoDS) | |
| Neurologic events | 4 (21.1%) |
| (i.e., cerebral aneurysm rupture leading to subarachnoid hemorrhage) | |
| Trauma | 3 (15.8%) |
| (i.e., severe injuries sustained in a motor vehicle accident) | |
| Surgical complication | 3 (15.8%) |
| (i.e., development of MoDS after gastric bypass surgery) | |
| Pancreatitis | 2 (10.5%) |
| (i.e., development of sepsis after acute pancreatis) | |
| Gastrointestinal bleeding | 1 (5.2%) |
| (i.e., development of ARDS after acute gastrointestinal bleeding) | |
| Advance Directive | |
| No | 9 (47.4%) |
| Yes | 10 (52.6%) |
| Family Members | 56 |
| Gender | |
| Female | 37 (66%) |
| Male | 19 (34%) |
| Race | |
| Black, non-Hispanic origin | 5 (8.9%) |
| White, non-Hispanic origin | 50 (89.3%) |
| Hispanic | 1 (1.8%) |
| Relationship to Patient | |
| Adult child | 32 (57.1%) |
| Spouse | 8 (14.3%) |
| Sibling | 5 (9.0%) |
| Parent | 4 (7.1%) |
| In-law | 4 (7.1%) |
| Other | 3 (5.4%) |
MODS, multiple-organ dysfunction syndrome; ARDS, acute respiratory distress syndrome.