Table 1. Participants.
| Additional information | ||||||
|---|---|---|---|---|---|---|
| Method | Type of participant | N | Focus group participants no. (range) | F | M | Cited as |
| Focus groups | ||||||
| All | 12 | 66 (3–8) | 59 | 7 | Parent FG | |
| New parents – multi-ethnica | 7 | 41 (3–8) | 38 | 3 | ||
| New parents – Afro-Caribbeanb | 2 | 10 (5) | 7 | 3 | ||
| SCD lay consumersc | 3 | 15 (4–7) | 14 | 1 | SCD FG | |
| Interviews | Health care providers | |||||
| All | 42 | F | M | Provider | ||
| Pediatricians | 5 | 3 | 2 | |||
| Midwives | 6 | 6 | 0 | |||
| Nurses (maternal/newborn) | 7 | 7 | 0 | |||
| Nurses (hematological) | 2 | 7 | 0 | |||
| Obstetricians | 3 | 0 | 3 | |||
| Hematologists | 3 | 0 | 3 | |||
| Genetics professionals | 9 | 4 | 5 | |||
| Family physicians | 7 | 3 | 4 | |||
| Community advocates: SCD | 8 | 7 | 1 | Advocate | ||
| Parents of SCD-carrier infants | ||||||
| Alld | 6 | Mothers | Fathers | SCD-infant | ||
| 5 | 1 | |||||
a
New parents (infants 6–18 months) recruited through diverse community and primary care organizations in Hamilton, Toronto, and Peterborough, Ontario.
b
New parents (infants 6–18 months) recruited in neighborhoods and through community associations and newspapers serving the Afro-Caribbean community in Toronto, Ontario.
c
Parents of, and persons with, SCD recruited through patient advocacy and parent support groups serving the SCD community in Toronto and Ottawa, Ontario.
d
New parents (infants 6 months to 2 years) recruited through a Toronto hospital with an in-house NBS for SCD screening program that reported carriers.