Table 2.
Points to Consider in Making Decision About Genetic Testing.
| Sub-theme: How testing is done | 14-17 Year-Olds (n=11) |
Parents (n=11) |
18-21 Year-Olds (n=11) |
|---|---|---|---|
| How, in general | 4 | 2 | 3 |
| What happens to sample | 2 | 0 | 1 |
| Who does it | 1 | 2 | 1 |
| Where is it done | 0 | 2 | 1 |
| How one gets results | 1 | 0 | 0 |
| How long results last | 1 | 0 | 0 |
| Sub-theme: Credibility of testing | |||
| Validity and reliability | 0 | 4 | 4 |
| Accuracy of test | 0 | 2 | 3 |
| Credibility of testing site | 0 | 1 | 3 |
| Specificity of testing | 0 | 2 | 1 |
| Sub-theme: Purpose of testing | |||
| General purpose (why done) | 3 | 3 | 3 |
| Personal risk for disease | 3 | 6 | 5 |
| Sub-theme: Outcomes of genetic testing | |||
| Prevent disease | 5 | 3 | 4 |
| Side effects of test | 0 | 1 | 0 |
| Psychological effects | 0 | 1 | 0 |
| Sub-theme: History of genetic testing | |||
| Number of people tested | 3 | 4 | 3 |
| Satisfaction with testing | 0 | 0 | 1 |
| Sub-theme: Cost of genetic testing | |||
| Expense | 0 | 2 | 4 |
| Time | 0 | 0 | 2 |
| Sub-theme: Meaning of test results | |||
| Ability to handle results | 0 | 0 | 3 |
| Burden of knowing | 0 | 4 | 1 |