Table 2.
Sub-theme: How testing is done | 14-17 Year-Olds (n=11) |
Parents (n=11) |
18-21 Year-Olds (n=11) |
---|---|---|---|
How, in general | 4 | 2 | 3 |
What happens to sample | 2 | 0 | 1 |
Who does it | 1 | 2 | 1 |
Where is it done | 0 | 2 | 1 |
How one gets results | 1 | 0 | 0 |
How long results last | 1 | 0 | 0 |
Sub-theme: Credibility of testing | |||
Validity and reliability | 0 | 4 | 4 |
Accuracy of test | 0 | 2 | 3 |
Credibility of testing site | 0 | 1 | 3 |
Specificity of testing | 0 | 2 | 1 |
Sub-theme: Purpose of testing | |||
General purpose (why done) | 3 | 3 | 3 |
Personal risk for disease | 3 | 6 | 5 |
Sub-theme: Outcomes of genetic testing | |||
Prevent disease | 5 | 3 | 4 |
Side effects of test | 0 | 1 | 0 |
Psychological effects | 0 | 1 | 0 |
Sub-theme: History of genetic testing | |||
Number of people tested | 3 | 4 | 3 |
Satisfaction with testing | 0 | 0 | 1 |
Sub-theme: Cost of genetic testing | |||
Expense | 0 | 2 | 4 |
Time | 0 | 0 | 2 |
Sub-theme: Meaning of test results | |||
Ability to handle results | 0 | 0 | 3 |
Burden of knowing | 0 | 4 | 1 |