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| Genetic status | Patients (choice of focus group or interview) n=12 | Patient representatives (interviews only) n=15 | Total (interviews and focus groups) n=27 |
|---|---|---|---|
| Patient advocatea | 0 | 3 | 3 |
| Diagnosed with a genetic condition | 4 | 7 | 11 |
| At risk for developing a genetic condition | 1 | 0 | 1 |
| Parent/grandparent of an affected child | 7 | 5 | 12 |
Not from a family affected by a genetic condition.
