Table 4.
The number of identified meaningful concepts in the selected haemophilia measures and the number of different ICF (ICF-CY) categories used for linkage distributed by ICF/ICF-CY components and level of hierarchy.
| Concepts & Categories | Children | Adults | |||||
|---|---|---|---|---|---|---|---|
| Total (Children/Adults) | Haemo-QoL | Total Adults | Haem-A-QoL | MedTap | Hemo-SatA | HEP-Test-Q | |
| number of items | 224 | 77 | 147 | 46 | 41 | 34 | 26 |
| number of meaningful concepts (total) | 365 | 123 | 242 | 83 | 62 | 62 | 35 |
| concepts linked to the ICF (Percentage)* | 283 (78%) | 83 (67%) | 200 (83%) | 60 (72%) | 51 (82%) | 59 (95%) | 30 (86%) |
| concepts not linked to the ICF (total number)** | 82 (22%) | 40 (33%) | 42 (17%) | 23 (28%) | 11 (18%) | 3 (5%) | 5 (14%) |
| ICF/ICF-CY categories used for linkage (total number) | 70 | 39 | 54 | 25 | 27 | 11 | 18 |
| for level of ICF hierarchy | |||||||
| 1st level | 8 | 4 | 7 | 2 | 3 | - | 2 |
| 2nd level | 33 | 22 | 21 | 10 | 11 | 7 | 6 |
| 3rd level | 28 | 12 | 25 | 12 | 13 | 4 | 10 |
| 4th level | 1 | 1 | 1 | 1 | - | - | - |
*Percentages are calculated based on the total number of concepts for each instrument;
**For ICF the total number of categories is 1,454 (Body functions: 493, Body structures: 310, Activity and Participation: 393, Environmental Factors: 258). For IC- CY the total number of categories is 1,685 (Body functions: 531, Body structures: 329, Activity and Participation: 552, Environmental Factors: 273) [35,39]