Table 7.
Frequencies of ICF/ICF-CY categories addressed in the different haemophilia-specific PROs in the component 'Activities and Participation'.
| Codes | Children | Adults | |||
|---|---|---|---|---|---|
| Haemo-QoL | Haem-A-QoL | MedTap | Hemo-SatA | HEP-Test-Q | |
|
d161 DIRECTING ATTENTION |
1* | ||||
|
d230 CARRYING OUT DAILY ROUTINE |
1 | 1 | 2 | 2 | |
|
d4 MOBILITY |
1 | 1 | |||
|
d430 LIFTING AND CARRYING OBJECTS |
1 | ||||
|
d4300 Lifting |
1 | ||||
|
d4302 Carrying in the arms |
1 | ||||
|
d450 WALKING |
1 | 1 | |||
|
d4501 Walking long distances |
1 | 1 | 1 | ||
|
d4502 Walking on different surfaces |
1 | ||||
|
d4551 Climbing |
1 | 4 | |||
|
d5 SELF-CARE |
1 | ||||
|
d570 LOOKING AFTER ONE'S HEALTH |
1 | 1 | |||
|
d5702 Maintaining one's health |
4 | 3 | 2 | ||
|
d6 DOMESTIC LIFE |
2 | ||||
|
d7 INTERPERSONAL INTERACTIONS AND RELATIONSHIPS |
1* | ||||
|
d710 BASIC INTERPERSONAL INTERACTIONS |
1* | ||||
|
d740 FORMAL RELATIONSHIPS |
1 | 2 | |||
|
d750 INFORMAL SOCIAL RELATIONSHIPS |
1 | ||||
|
d7500 Informal relationships with friends |
4 | 1 | |||
|
d7504 Informal relationships with peers |
1* | ||||
|
d760 FAMILY RELATIONSHIPS |
1 | 1 | |||
|
d7600 Parent-child relationships |
1 | ||||
|
d770 INTIMATE RELATIONSHIPS |
2 | 3 | 1 | ||
|
d820 SCHOOL EDUCATION |
4 | 4 | 2 | 1 | |
|
d830 HIGHER EDUCATION |
4 | ||||
|
d835 SCHOOL LIFE AND RELATED ACTIVITIES |
3* | ||||
|
d8450 Seeking employment |
1 | ||||
|
d8451 Maintaining a job |
1 | ||||
|
d850 REMUNERATIVE EMPLOYMENT |
4 | 2 | 1 | ||
|
d880 ENGAGEMENT IN PLAY |
1* | ||||
|
d9 COMMUNITY, SOCIAL AND CIVIC LIFE |
1 | ||||
|
d920 RECREATION AND LEISURE |
1 | 2 | 2 | 2 | |
|
d9201 Sports |
4 | 3 | 1 | 3 | 1 |
|
d9202 Arts and culture |
1 | ||||
|
d9205 Socializing |
1 | ||||
| TOTAL | 33 | 28 | 21 | 14 | 12 |
* Category only included in the paediatric Haemo-QoL instrument