Table 1.
QLCCDQ - examples of questions
| Domains | ||||||||
|---|---|---|---|---|---|---|---|---|
| Symptoms | ||||||||
| Did the child show any worrying symptoms? | ||||||||
| All the time | Most of the time | Often | Sometime | Seldom | Very seldom | Never | ||
| Emotions | ||||||||
| Have you experienced anxiety because of your child's health problems? | ||||||||
| All the time | Most of the time | Often | Sometimes | Seldom | Very seldom | Never | ||
| Role functioning | ||||||||
| Social | ||||||||
| Please indicate how much you have been limited by your child's disease in listed activities in past two weeks - Social activities (going to church, cinema, visiting friends) | ||||||||
| Extremely limited | Very limited | Quite limited | Moderately limited | Somewhat limited | Hardly limited | Not limited | ||
| Occupational | ||||||||
| Please indicate how much you have been limited by your child's disease in work related activities in past two weeks | ||||||||
| Extremely limited | Very limited | Quite limited | Moderately limited | Somewhat limited | Hardly limited | Not limited | ||
| Family | ||||||||
| Do you struggle to find time to spend with other family members (spouse, another child) because of your child' disease? | ||||||||
| Extremely limited | Very limited | Quite limited | Moderately limited | Somewhat limited | Hardly limited | Not limited | ||
| Scaling for answers (points) | 1 | 2 | 3 | 4 | 5 | 6 | 7 | |