Table 3.
Reported importance of parent's concerns due to child's chronic disease
| Parents' reported concerns | Percent of respondents1) | Mean scores 2) | SD | Min | Max |
|---|---|---|---|---|---|
| Experience anxiety due to child's chronic disease | 100 | 4.9 | 0.2 | 4 | 5 |
| Worried or concerned about child's future, due to their disease | 100 | 4.9 | 0.2 | 4 | 5 |
| Giving up meeting friends because of child's disease | 100 | 4.7 | 0.5 | 4 | 5 |
| Feeling depressed because of child's disease | 100 | 4.8 | 0.4 | 4 | 5 |
| Experience anxiety due to child's disease/symptoms | 100 | 4.8 | 0.4 | 4 | 5 |
| Struggling to find time to spend with other family members (spouse, another child) because of child's disease | 95.4 | 4.7 | 0.5 | 4 | 5 |
| Limitation in attention given to other family members | 95.4 | 4.7 | 0.5 | 4 | 5 |
| Feeling guilty due to child's disease | 7.7 | 4.6 | 1.1 | 3 | 5 |
| Impact of diesase on own or family's financial situation | 27.7 | 3.5 | 1.1 | 2 | 5 |
| Limitations in work related activities | 75.4 | 4.5 | 0.5 | 4 | 5 |
| Refrained from hobbies/entertainment because of child's disease | 86.1 | 4.6 | 0.5 | 4 | 5 |
| Limitations in household activities (housework, shopping, cleaning) | 87.7 | 4.7 | 0.5 | 4 | 5 |
| Feeling shame as the result of child's disease | 3.1 | 5 | 0.0 | 5 | 5 |
1) percentage of parents who rated the concern as relevant
2) 5-point scales used (1:not important to 5:very important)