| Service receipt for HD patients | Number (%) of total sample receiving services at visit 1 (n=451) | Number (%) of total sample receiving services at visit 2 (n=105) | Number (valid %) of total sample receiving services at visit 3 (n=47) | 
| Hospital services Inpatient Outpatient | 335 (75%) 110 (24%) 300 (69%) | 73 (70%) 58 (64%) 17 (16%) | 29 (62%) 28 (60%) 5 (11%) | 
| Primary and Community care GP Neurologist Other doctor Physiotherapist Social Worker Nurse Speech Therapist Home-help Other (Occupational therapy, Dentistry; Chiropractor) | 401 (89%) 333 (74%) 170 (38%) 73 (16%) 91 (20%) 45 (10%) 30 (7%) 58 (13%) 51 (11%) 42 (9%) | 89 (85%) 68 (65%) 35 (33%) 14 (14%) 31 (30%) 14 (13%) 15 (14%) 18 (17%) 15 (14%) 15 (14%) | 44 (94%) 36 (77%) 25 (53%) 6 (13%) 21 (45%) 4 (9%) 4 (9%) 13 (28%) 9 (19%) 7 (15%) | 
| Informal Care Personal care Help inside the home Help outside the home Other | 224 (50%) 130 (29%) 195 (43%) 170 (38%) 36 (8%) | 71 (68%) 14 (39%) 63 (60%) 54 (51%) 14 (13%) | 32 (68%) 22 (47%) 29 (62%) 25 (53%) 7 (15%) |