Table 4.
Interview Guide Questions |
HIV Stigma Themes Elicited | HIV Stigma Theoretical Constructsa | |||||
---|---|---|---|---|---|---|---|
PS | ES | IS | FNS | VS | Other | ||
What do people in your community think about HIV/AIDS? | ■ Lack of HIV education | X | |||||
■ Denial about HIV/AIDS | X | ||||||
■ Perceptions of who is at-risk | X | ||||||
■ Fear of HIV transmission | X | ||||||
■ People not aware of their HIV status | X | ||||||
■ Certain groups considered “sinners” | X | ||||||
■ PLWHA say they have other disease | X | ||||||
■ PLWHA feel/are isolated | X | X | |||||
■ Local health care providers think/act negatively toward PLWHA | X | X | |||||
How are PLWHA treated in the community? | ■ Treated badly, considered “bad” person | X | |||||
■ Subjected to violence | X | ||||||
■ How PLWHA treated changes when people discover their HIV status | X | ||||||
■ Do not want to be near PLWHA | X | X | |||||
■ Denied employment/housing | X | ||||||
Are certain HIVpositive groups more discriminated against than others? | ■ Homosexuals/gays | X | |||||
■ Those perceived to be HIV-positive because of how they look | X | X | |||||
■ “Promiscuous” women or sex workers | X | X | |||||
■ Drug users | X | X | |||||
■ African Americans | X | X | |||||
What makes it difficult to bring HIV clinical trials into communities? | ■ Others will find out who is participating in HIV clinical trials | X | |||||
■ Clinical trial venues will be known as places to go for HIV research/care | X | ||||||
■ Only participate in HIV clinical trial if site was outside of their town | X | ||||||
What about using a mobile van in your community as a way for people who are HIVpositive to enroll and participate in clinical trials? | ■ Not good because the mobile van will be known as the “HIV bus” | X | |||||
Who have you not told that you have HIV?b | ■ No one knows | X | |||||
■ Family members | X | ||||||
■ Friends | X | ||||||
What are your reasons for non-disclosure?b | ■ Fear of being treated badly | X | |||||
■ Uncertainty how others will react | X | ||||||
■ Wanted to keep HIV status confidential | X |
PS = Perceived stigma; ES = Experienced stigma; IS = Internalized stigma; FNS = Felt normative stigma; VS = Vicarious stigma; and Other = Emerging category(ies) of stigma, or related to stigma.
Questions were asked to persons living with HIV/AIDS (PLWHA) only.