“Owner” of record |
Provider, organization |
Patient |
Record access |
Through authority (provider) |
Through patient |
Data system |
Somewhat inflexible |
Highly flexible |
Data model |
Vertical by disease, problem |
Relational across diseases, problems |
Record integration |
Fragmented across settings |
Integrated across settings |
Institutional relationship |
Tethered to a specific care setting, intermediated through provider or care environment |
Institutionally tethered through subscription and server storage but may be disintermediated |
Authentication |
Institutional identify |
PCHR based |
Friendly to services, applications |
No |
Yes, contingent on access, consent, standards |
Research friendly |
Historically not, typically narrow, purpose-driven around care monitoring |
Emerging models for engaging cohorts, can support broad investigations |