Table 2.
Sample Characteristics
| All Institutions | GCRCs | SPOREs | |
|---|---|---|---|
| Protocol Characteristics | n = 139 | n = 115 | n = 24 |
| Sponsor | |||
| Government | 104 (74.8%) | 86 (74.8%) | 18 (75%) |
| Industry | 18 (13.0%) | 17 (14.8%) | 1 (4.2%) |
| Other | 5 (3.6%) | 3 (2.6%) | 2 (8.3%) |
| Missing | 12 (8.6%) | 9 (7.8%) | 3 (12.5%) |
| Study type | |||
| Nontreatment | 67 (48.2%) | 64 (55.7%) | 3 (12.5%) |
| Tissue procurement/banking only | 25 (18.0%) | 6 (5.2%) | 19 (79.2%) |
| Treatment | 46 (33.1%) | 45 (39.1%) | 1 (4.2%) |
| Other | 1 (0.7%) | 0 (0.0%) | 1 (4.2%) |
| Human biological materials collection | |||
| Prospective | 127 (91.4%) | 112 (97.4%) | 15 (62.5%) |
| Existing | 7 (5.0%) | 2 (1.7%) | 5 (20.1%) |
| Mixed | 5 (3.6%) | 1 (0.9%) | 4 (16.7%) |
| Genetics | |||
| Primary aim | 46 (33.1%) | 43 (37.4%) | 3 (12.5%) |
| Secondary aim | 45 (32.3%) | 43 (37.4%) | 2 (8.3%) |
| Future research | 23 (16.6%) | 12 (10.4%) | 11 (45.8%) |
| Not mentioned in protocol/consent | 25 (18.0%) | 17 (14.8%) | 8 (33.3%) |
| Age | |||
| Adult | 89 (64.0%) | 71 (61.7%) | 18 (75%) |
| Child | 15 (10.8%) | 15 (13.0%) | 0 (0.0%) |
| Adult, child | 33 (23.7%) | 29 (25.2%) | 4 (16.7%) |
| Not available in data | 2 (1.4%) | 0 (0.0%) | 2 (8.3%) |
| Investigator Characteristics | n = 130 | n = 106 | n = 24 |
| Degree | |||
| MD | 83 (63.8%) | 74 (69.8%) | 9 (35.7%) |
| MD+ | 24 (18.5%) | 17 (16.0%) | 7 (29.2%) |
| PhD | 18 (13.9%) | 11 (10.4%) | 7 (29.2%) |
| PhD+ | 0 (0.0%) | 0 (0.0%) | 0 (0.0%) |
| Other | 3 (2.3%) | 2 (1.9%) | 1 (4.2%) |
| Missing | 2 (1.5%) | 2 (1.9%) | 0 (0.0%) |
| Rank | |||
| Professor | 64 (49.2%) | 49 (46.2%) | 15 (62.5%) |
| Associate professor | 26 (20.0%) | 22 (20.8%) | 4 (16.7%) |
| Assistant professor | 26 (20.0%) | 24 (22.6%) | 2 (8.3%) |
| Other | 5 (3.9%) | 3 (2.8%) | 2 (8.3%) |
| Missing | 9 (6.9%) | 8 (7.6%) | 1 (4.2%) |
| Institutional Characteristics | n = 36 | n = 17 | n = 19 |
| Public | 18 (50%) | 10 (58.9%) | 8 (42.1%) |
| Private | 18 (50%) | 7 (41.1%) | 11 (57.9%) |
| Geographic location | — | — | — |
| Northeast | 8 (22.2%) | 4 (23.5%) | 4 (21.1%) |
| Southeast | 8 (22.2%) | 2 (11.8%) | 6 (31.6%) |
| Midwest/central | 9 (25%) | 5 (29.4%) | 4 (21.1%) |
| West | 11 (30.6%) | 6 (35.3%) | 5 (26.3%) |