Table 3.

Mental component scale scores (TAAQoL) of parents of children with PKU and Galactosemia predicted by demographic, medical and psychosocial characteristics, in a multilevel linear model

	PKU			Galactosemia
	Coefficient β	SE of β	95% CI	Coefficient β	SE of β	95% CI
Fixed effects
Socio-demographic
Age child	0.21*	0.10	0.02; 0.41	−0.09	0.10	−0.29; 0.10
Parental gender (female)	−0.17	0.16	−0.49; 0.15	−0.38b	0.20	−0.78; 0.02
Native country (Netherlands)	0.45	0.34	−0.22; 1.12	−0.07	0.29	−0.66; 0.51
Chronically ill	−0.20	0.32	−0.83; 0.43	−0.17	0.43	−1.02; 0.68
Medical
Disease development (stable)	0.32a	0.17	−0.03; 0.66	0.38c	0.20	−0.02; 0.77
Care dependency	−0.17	0.11	−0.40; 0.05	−0.07	0.10	−0.26; 0.12
Psychosocial
Emotional support	0.20*	0.09	0.02; 0.38	0.38**	0.10	0.17; 0.58
Loss of friendship	−1.2**	0.32	−1.8; −0.52	0.06	0.28	−0.49; 0.62
Contact fellow sufferers	0.11	0.27	-0.41; 0.64	0.18	0.22	-0.25; 0.61
Job adjustment	0.09	0.22	-0.36; 0.53	−0.41d	0.22	-0.86; 0.04
% Explained variance by fixed effects	31.7			30.6
Total number of observations	109			65

Variables not included in the model: tube-feeding, dependency on medical equipment, problems making contact, hours of sleep per night, given up hobby.

* p < 0.05, **p < 0.001

^a p = 0.071

^b p = 0.062

^c p = 0.059

^d p = 0.072