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. Author manuscript; available in PMC: 2011 Apr 8.
Published in final edited form as: Genet Test. 2008 Mar;12(1):81–91. doi: 10.1089/gte.2007.0037
For those relatives with whom you did not share your results, please rate each reason on a scale from 1–4 to indicate how much of a role it played in your not sharing the information.
a. I do not know some of my relatives very well 1 2 3 4
b. I do not have a good relationship with some of my relatives 1 2 3 4
c. I did not believe the information would be useful to them 1 2 3 4
d. I was concerned about genetic discrimination 1 2 3 4
e. I did not think the relative could handle the information emotionally 1 2 3 4
f. I was worried about being responsible for causing problems in a relationship or marriage 1 2 3 4
g. My relative told me they did not want to know 1 2 3 4
h. I have not had time to tell my relatives 1 2 3 4
i. It is difficult to contact some of my relatives 1 2 3 4
j. A relative was having difficulties and I did not want to burden them 1 2 3 4
Other:_____

1 = No role

2 = A small role

3 = A medium role

4 = A large role