. Author manuscript; available in PMC: 2012 Mar 1.

Published in final edited form as: Psychiatr Clin North Am. 2010 Dec 22;34(1):147–166. doi: 10.1016/j.psc.2010.11.005

Table 3.

Legislative acts and initiatives supporting genomic medicine

Legislative Acts/Initiatives	Description	Reference
Genetic Information Non- Discrimination Act (GINA)	Protects against discrimination based on genetic information regarding health insurance and employment.	[95]
HHS Personalized Health Care Initiative	Provide federal leadership supporting research addressing individual aspects of disease and disease prevention. Goal is to shape preventive and diagnostic care to match each person’s unique genetic characteristics.	[96]
Genomics and Personalized Medicine Act	A bill to improve access to and appropriate utilization of valid, reliable and accurate molecular genetic tests by all populations.	[97]
Ethical, Legal, and Social Issues (ELSI) Research in Genomics	The U.S. Department of Energy (DOE) and the National Institutes of Health (NIH) devote 3% to 5% of their annual Human Genome Program budgets toward studying the ethical, legal, and social issues (ELSI) surrounding availability of genetic information. This represents the world’s largest bioethics program.	[82]

Data from Reference [1].