Table 2.
Study | Study design | Sample, age | Clinical area | Country | Study description | Findings |
---|---|---|---|---|---|---|
Beaudoin et al. [56] | Within-subject “think aloud” protocol | N = 16, adults | Web portal users | USA | Usability of different PWP formats: serial vs menu-driven | Greater user satisfaction with menu-driven format |
Ma et al. [24] | Mixed-method: surveys and interviews/focus groups |
N = 12 patients, 51 y N = 5 providers |
Type 2 and providers | USA | Introduction to PWP, reminder calls to use the system, and follow-up focus groups and satisfaction surveys | Patients found portal usable, reported positive feedback Providers reported both positive and critical feedback All providers would recommend portal to patients Prioritization of educational information based on patient characteristics may have limited benefit for patients who have very well-controlled diabetes, and for those who are very confident in their diabetes knowledge |
Hess et al. [20] | Qualitative: focus groups | N = 39, 54 y | Type 1 and 2 | USA | Assessed barriers and successes of PWP via pre and post implementation focus groups. Compared number of patient/provider communications pre and post implementation |
No significant change in the number of phone calls, post implementation. Significantly more email messages through PWP Patients report a belief that PWP would increase communication with providers Patients appreciate remote access to laboratory results, and are generally receptive to technology Patients expect quick responses from providers through PWP |
Ross et al. [25] | Qualitative: interviews | N = 37, adults | Type 1 and 2 | USA | Interviewed users of Diabetes-STAR PWP | User preferences include the following:
|
Bryce et al. [21] | Mixed-method: focus groups and surveys | N = 39, 54 y | Type 1 and 2 | USA | Rated usefulness of 15 features of PWP for diabetes management. Assessed patients’ willingness to pay for PWP services |
Patients rated online calculator to estimate BG control, appointment reminder systems, email access to providers, personal tracking logs, and online scheduling as most useful features Patients are not willing to pay for PWP services Patients feel that the health care system benefits from disease management and should provide PWP services to patients for free |
Fonda et al. [18] | Mixed-method: “think-aloud” protocol, interviews, and surveys | N = 6 | Providers (NPs and care managers) | USA | Assessed usability of Internet-based informatics application, CDMP | Providers rated usability of CDMP as neutral to favorable Reported problems with ease of use, performance, and support features Reported satisfaction with visual appeal and educational content Areas for improvement include navigation and terminology |
Olshansky et al. [19] | Qualitative: focus groups | N = 39 adults | Type 1 and 2 | USA | Explored perceptions of people with diabetes about their experiences with disease management in focus groups, pre and post portal implementation | Patients stressed the importance of “normalizing an identity as a person with diabetes” Education through PWP can help normalize diabetes for patients by framing life changes as healthy changes for all people, as opposed to diabetes specific changes. |
Zickmund et al. [22] | Qualitative: focus groups | N = 39, 54 y | Type 1 and 2 | USA | Assessed the role of the patient-provider relationship in patient interesting using a PWP | Interest in portal use was linked to dissatisfaction with provider-patient communication/responsiveness Interest in portal use was linked to dissatisfaction with current access to information and/or laboratory results Patients feared that they would have difficulty using the PWP, that they might lose personal relationships with their providers Patients who had fears about email use transferred those fears to the PWP |
Britto et al. [42] | Quantitative: time for task completion and surveys | N = 16, 39 y | Parents of pediatric patients with diabetes, cystic fibrosis, and arthritis | USA | Measured the time it took parents to complete or give up on PWP tasks. Analyzed themes in PWP use, and results from Computer Usability Satisfaction Questionnaire |
Mean task completion ranged from 73 seconds to locate a document to 431 seconds to graph laboratory results Challenging tasks include: graphing data, locating data, requesting access, and interpreting data Usability assessments can help improve patient use and satisfaction, as mean satisfaction scores improved as changes were made to PWP based on assessment results |
Nordqvist et al. [41] | Qualitative: interviews | N = 20, NR | Providers | Sweden | Practitioners assessed PWP | PWP development can enhance a sense of community among health care providers Providers view PWP as complement to the care they provide Providers expect email communication to save them time, but emphasize the importance of face-to-face visits |
Wald et al. [28] | Quantitative: surveys | N = 126, 59 y | Type 2 and providers | USA | Patient Gateway; pre-visit electronic journal linked with PWP | 60% of patients reported feeling more prepared for their appointments after using the electronic journal 53% of patients reported that they provided more accurate information to their provider after using electronic journal 44% of patients reported that the electronic journal improved communication with their provider Providers reviewed the journal before the appointment in 61% of the cases |
ADA—American Diabetes Association; BG—blood glucose; CDMP—Comprehensive Diabetes Management Program; NP—nurse practitioner; NR—not reported; PWP—patient web portal; USA—United States of America.