Table 1.
Impact of HIV/AIDS on mothers’ ability to attend activities with their children: percent of mothers indicating each response overall and by race/ethnicity
| Activities/reasons | Total (%) | Latina (%) | African American (%) | Multi-racial (%) | White (%) | Illustrative quotations |
|---|---|---|---|---|---|---|
| Mothers who missed out on specific activities (n = 34) | ||||||
| School and extracurricular activities | 47 | 53 | 50 | 25 | 0 | “The school was far away, sometimes I didn’t have the energy…I didn’t go to the meetings…the teachers would call me” |
| Going places | 42 | 53 | 21 | 50 | 50 | “When a certain time of day comes, I can’t do anything. So when my son wants to go to the movies…I can’t take him…I couldn’t do many things” |
| Daily care | 35 | 27 | 36 | 50 | 50 | “You feel useless. You cannot cook for your kids, take care of them” |
| Active, leisure time play | 18 | 27 | 7 | 0 | 50 | “There was a lot of things. I think a lot of it had to do with just being able to go out and experience a lot of physical things” |
| Reasons for missing activities (n = 34) | ||||||
| Poor physical health | 94 | 87 | 100 | 100 | 100 | “I was so sick so it was hard taking care of him” |
| Poor mental health | 26 | 33 | 15 | 50 | 33 | “I’d rather sit home and do nothing in my depression than get out of it and let him have more of a normal childhood” |
| Stigma/secrecy | 12 | 7 | 15 | 0 | 50 | “I wanted to hide…I was very ashamed” |
| Reasons for not missing activities (n = 23) | ||||||
| Good physical health | 78 | 92 | 71 | 0 | 50 | “I pretty much haven’t been ill during their whole life” |
| HIV as motivator to do “more” | 17 | 8 | 14 | 0 | 50 | “I think it caused us [to do] more” |
| “Powering through” limitations | 17 | 17 | 29 | 0 | 0 | “I just push myself and just go and catch up with rest later” |