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. 2011 Jun;101(6):1011–1023. doi: 10.2105/AJPH.2010.300102

TABLE 2.

Studies (n = 96) on Levels and Patterns of HIV Status Disclosure, January 1997–October 2008

Population (Location) No. of Studies Disclosure to Anybody, % Disclosure to Sexual Partners, % Disclosure to Family, % Disclosure to Friends, %
United States (n = 46)
Adults1423 10 82 56–81 (casual partners 25; main partners 74) 70–87 (77–79 to mothers; 47–65 to fathers) 26–88
Parent to children2434,ab 11 30–75 to parents; 32–62 to children
Men3536 2 53–60
Women3745 9 96–100 68–92 60–84 (66–81 to mothers; 25–51 to fathers) 28–83
MSM12,17,4655,c 12 80–97 54–80 (38-42 casual partners) 50 (37–67 to mothers; 23–47 to fathers) 85
Injection drug users56,57 2 61–86
Europe (n = 10)
Adults (France,5860 Russian Federation,61 Sweden,62 United Kingdom6365) 8 85–97 88–97 53–77 57–79
Parent to children (Belgium66) 1 10 to children
Women (United Kingdom67) 1 81
Sub-Saharan Africa (n = 26)
Adults (Burkina Faso,68 Ethiopia,69 Kenya13,d, Nigeria,70 South Africa,7174 Uganda,75 Tanzania,76,77 Zambia78) 12 22–96 28–91 (65 by men; 73 by women) 60–75 6–43
Parent to children (South Africa,79 Uganda80) 2 44–50e
Women (Burkina Faso,81,82 Côte d'Ivoire,83Kenya,84,85 Malawi,86 South Africa,8789 Tanzania9092) 12 22–94 (46 HIV+; 97 HIV–) 17–90 (64 HIV+; 80 HIV–) 20–22 15
Asia (n = 8)
Adults (China,93 India9496,f) 4 (35 involuntary; 65 voluntary) 70 (100 by women; 65 by men) 78 7
Men (Taiwan97) 1 72
Women (India,98 Thailand99) 2 37–84 34 family or friends 34 family or friends
Injection drug users (Vietnam100) 1 0 (no respondents disclosed)e
Caribbean (n = 1)
Adults (French Antilles/Guyana101) 1 70 85 56
Reviews (n = 5)
Adults7,8,102 3 68–97 22–86 (70-92 LIC; 44–67 HIC) 61–86
Men4 1 67–88
Women3 1 17–86

Note. HIC = high-income countries; LIC = low-income countries; MSM = men who have sex with men. For multiple studies on a country or population, the table presents the range of disclosure rates (minimum and maximum) reported in the studies.

a

Emlet also reported that adults aged 50 years or older disclosed their HIV status to those in their social networks less frequently than younger adults did.34

b

Two statistics are included: the percentage of parents who reported disclosing to children and the percentage of children who were told by their parents.

c

The study by Marks and Crepaz of HIV-positive men (homosexual, bisexual, and heterosexual) is counted under MSM, who represent the majority of the study sample.12 Similarly, the Weinhardt et al. study of MSM, women, and heterosexual men is counted under MSM, who represent the majority of the study sample.17

d

Grinstead et al. covers Kenya, Tanzania, and Trinidad, but it is listed under Africa and counted once under Kenya.13

e

Includes data from studies with fewer than 25 participants.

f

In Mulye et al., patients’ spouses (23%) and relatives (2%–12%) knew patients’ HIV status after it was disclosed to patients in their presence.94