Table 3.

Most frequent codes

Category	Code	Subcodes	Definition	Direct responses to questions	Direct responses to questions+additional utterances found elsewhere in transcripts
Experiences	Facing barriers to  screening and  listing screening  types		When participants list the types of cancer  screenings in which they participate and  the problems thereabout	13	22
	Feeling in limbo in  the healthcare  system		When patients feel displaced because the  clinic or providers’ specialty is either  too general or too cancer-specific	9	19
	Communicating  with providers	Complying with  providers’ directives	When participants describe following  medical directives; when they make  statements of trust in and adherence  to physician instruction	9	16
		Paying providers’  compliments	When participants praise providers,  healthcare facilities, or other aspects  of their medical care	8	12
		Complaining about  providers	Troubled or problematic interactions  (past or present), inaccurate information,  unhelpful care, etc., involving physicians,  nurses, PAs, pharmacists, and any others  in the medical community	7	14
	Determining  whether current  health problems  are cancer-related	Describing other  health utilization	When participants mentioned confounders  and other health problems above  and beyond those caused by cancer and  its treatment	9	14
		Unclear determining  whether current  health problems are  cancer-related	When participants are unclear if a current  health condition is related to cancer or its  treatment	4	4
	Using nonprescribed  remedy		Survivor’s knowledge and use of remedies  for mitigating late effects through  prescribed or nonprescribed methods.  Includes remedies used to ease or help with  the complications of other remedies	7	13
Attitudes	Perception of  survivorship		Attitudes, valuations, and opinions about the  significance, definition, characteristics of  survivorship on whole; an outlook on  survivorship	10	12
	Reoccurrence  concerns		Attention paid and emotions felt about the  probability or risk of recurrence	9	14
	Retrospective  self-perception		Framing discussion of survivorship  experiences by describing life during  cancer diagnoses and treatment	7	11
	Self-agency		Statements about survivors’ control or lack  of control over health	6	10
Social issues	Modeling behaviors  of others		Telling a narrative about another person’s  experience	6	8
	Weighing the  effects on family		Volunteering stories about other family  members’ experiences with cancer	6	6
	Weighing the social  effects of care		When participants describe the effects of  long-term side effects on their social lives	4	5