Table 1.
Definitions and instruments of the health status sub-domains measured by the Nijmegen Clinical Screening Instrument
| Domain | Sub-domain | Definition | Instruments |
|---|---|---|---|
| Symptoms | Subjective symptoms | The patient's overall burden of pulmonary symptoms | PARS-D Global Dyspnea Activity, Global Dyspnea Burden (15) |
| Dyspnoea emotions | The level of frustration and anxiety a person experiences when dyspnoeic | DEQ Frustration, Anxiety (15) | |
| Fatigue | The level of experienced fatigue | CIS Subjective fatigue (16) | |
| Functional impairment | Behavioural impairment | The extent to which a person cannot perform specific and concrete activities as a result of having the disease | SIP Home Management, Ambulation (17) |
| Subjective impairment | The experienced degree of impairment in general and in social functioning | QoLRiQ General Activities (18) | |
| Quality of Life | General Quality of Life | Mood and the satisfaction of a person with his/her life as a whole | BDI Primary Care (19) Satisfaction With Life Scale (20) |
| Health-related Quality of Life | Satisfaction related to physiological functioning and the future | Satisfaction Physiological Functioning, Satisfaction Future (15) | |
| Satisfaction relations | Satisfaction with the (absent) relationships with spouse and others | Satisfaction spouse, Satisfaction social (15) | |
PARS-D: Physical Activity Rating Scale-Dyspnea; DEQ: Dyspnea Emotions Questionnaire; CIS: Checklist Individual Strength; SIP: Sickness Impact Profile; QoLRiQ: Quality of Life for Respiratory Illness Questionnaire; BDI: Beck Depression Inventory