Table 2.
Associations between no blood and/or mouthwash samples given during NCCCS and participant responses to questions on trust and discrimination
| General Questions on Trust/Discrimination | n | % No Blood | % No Mouthwash | % Neither |
|---|---|---|---|---|
| Lose insurance coverage by taking part in study | ||||
| Agree | 153 | 17 | 10 | 5 |
| Do Not Agree/Don’t Know | 608 | 14 | 7 | 3 |
|
| ||||
| Lose privacy when giving a sample for research | ||||
| Agree | 179 | 18 | 122 | 81 |
| Do Not Agree/Don’t Know | 585 | 13 | 7 | 2 |
|
| ||||
| Shouldn’t do research until we know how info used | ||||
| Agree | 368 | 181 | 9 | 4 |
| Do Not Agree/Don’t Know | 391 | 11 | 7 | 3 |
|
| ||||
| Government can’t be trusted to regulate use of genetic info | ||||
| Agree | 287 | 182 | 8 | 5 |
| Do Not Agree/Don’t Know | 468 | 12 | 8 | 3 |
|
| ||||
| Trust medical researchers | ||||
| Agree | 707 | 14 | 71 | 31 |
| Do Not Agree/Don’t Know | 56 | 18 | 17 | 11 |
|
| ||||
| Research participants may be deceived by researchers | ||||
| Agree | 226 | 192 | 8 | 5 |
| Do Not Agree/Don’t Know | 533 | 13 | 7 | 3 |
|
| ||||
| Researchers want to know more than they need to know | ||||
| Agree | 145 | 211 | 11 | 81 |
| Do Not Agree/Don’t Know | 619 | 13 | 7 | 2 |
|
| ||||
| Researchers do harmful experiments w/o pt’s knowledge | ||||
| Agree | 194 | 16 | 7 | 5 |
| Do Not Agree/Don’t Know | 569 | 14 | 8 | 3 |
|
| ||||
| Medical researchers use minorities as guinea pigs | ||||
| Agree | 77 | 232 | 10 | 111 |
| Do Not Agree/Don’t Know | 684 | 13 | 8 | 3 |
1
p<0.01
2
p<0.05