Table 2.
Descriptive statistics, factor analysis and internal consistency
Scale/item | Missing (%) | Mean (sd) | Frequency (%) | Factor loading | Cronbach's alpha (scale)/item-total correlation | ||||
---|---|---|---|---|---|---|---|---|---|
1 | 2 | 3 | 4 | 5a | |||||
Relationship with health personnelb | 172 (2.2) | 74.92 (18.43)c | 0.94 | ||||||
Care and consideration - parent | 170 (2.2) | 3.81 (0.93) | 148 (1.9) | 501 (6.5) | 1813 (23.5) | 3438 (44.6) | 1800 (23.4) | 0.82 | 0.82 |
Understanding of situation | 256 (3.3) | 3.85 (0.94) | 162 (2.1) | 45 (5.9) | 1701 (22.3) | 3372 (44.3) | 1927 (25.3) | 0.84 | 0.84 |
Care and consideration - child | 273 (3.5) | 4.14 (0.82) | 49 (0.6) | 216 (2.8) | 1110 (14.6) | 3431 (45.2) | 2791 (36.7) | 0.82 | 0.78 |
Met with politeness and respect | 116 (1.5) | 4.35 (0.73) | 49 (0.6) | 90 (1.2) | 616 (7.9) | 3359 (43.3) | 3640 (46.9) | 0.91 | 0.78 |
Spoke in a way that was understandable | 242 (3.1) | 4.33 (0.71) | 30 (0.4) | 97 (1.3) | 585 (7.7) | 3529 (46.3) | 3387 (44.4) | 0.74 | 0.66 |
Took viewpoints seriously | 274 (3.5) | 4.04 (0.91) | 125 (1.6) | 321 (4.2) | 1275 (16.8) | 3251 (42.8) | 2624 (33.3) | 0.82 | 0.83 |
Had enough time for contact/conversation | 258 (3.3) | 3.90 (0.97) | 261 (3.4) | 977 (12.8) | 2122 (27.9) | 2865 (37.6) | 1387 (18.2) | 0.54 | 0.69 |
Cooperation with parent | 194 (2.5) | 3.54 (1.04) | 180 (2.3) | 489 (6.4) | 1457 (19.0) | 3333 (43.4) | 2217 (28.9) | 0.76 | 0.86 |
Information and participationb | 273 (3.5) | 59.56 (23.72) | 0.88 | ||||||
Participation in choice of treatment | 323 (4.1) | 3.59 (1.08) | 394 (5.2) | 776 (10.3) | 1921 (25.5) | 2911 (38.6) | 1545 (20.5) | 0.89 | 0.79 |
Inflluence in choice of treatment | 392 (5.0) | 3.39 (1.22) | 491 (6.6) | 1058 (14.1) | 2225 (29.8) | 2492 (33.3) | 1212 (16.2) | 0.91 | 0.76 |
Information - treatment | 376 (4.8) | 3.11 (1.12) | 668 (8.9) | 1502 (20.0) | 2478 (33.1) | 2002 (26.7) | 844 (11.3) | 0.75 | 0.75 |
Information - child's condition | 365 (4.6) | 3.43 (1.10) | 449 (6.0) | 1018 (13.6) | 2117 (28.2) | 2631 (35.1) | 1290 (17.2) | 0.53 | 0.65 |
Outcomed | 367 (4.6) | 72.08 (21.32) | 0.91 | ||||||
Child's outcome from treatment | 324 (4.1) | 3.96 (0.94) | 110 (1.5) | 202 (2.7) | 2187 (29.0) | 2394 (31.7) | 2653 (35.2) | 0.90 | 0.84 |
Child's function in the family | 382 (4.9) | 3.81 (0.93) | 107 (1.4) | 175 (2.2) | 2574 (32.7) | 2366 (30.1) | 2266 (28.8) | 0.89 | 0.86 |
Child's function outside of family | 441 (5.6) | 2.39 (0.92) | 128 (1.7) | 239 (3.2) | 2557 (34.4) | 2469 (33.2) | 2036 (27.4) | 0.83 | 0.89 |
a 1 and 5 represent the worst and best possible patient experiences respectively.
b Items within these scales have five-point descriptive scales from "not at all" to "to a very large extent".
c The three scales are scored from 0 to 100 where 100 represents the best possible experiences.
d Items within the outcome scale have a five-point scale from "much worse" to "much better".