Table 2.
Acceptance and perceptions of benefits and harms of dementia screening among the two cohorts.
| PRISM-PC Domains and Items | Caregivers (n = 81) Mean (SD) |
Non-caregivers (N = 125) Mean (SD) |
p-value* |
|---|---|---|---|
| Dementia screening acceptance score | 53.9 (21.8) | 60.6 (17.7) | |
| Like to know if at higher risk for AD | 3.25 (1.2) | 3.49 (0.9) | 0.029 |
| Like to know if I have AD | 3.46 (1.1) | 3.66 (0.9) | 0.161 |
| Like to be tested for AD with short questionnaire | 3.31 (1.1) | 3.41 (0.9) | 0.514 |
| Like to be tested for AD with blood sample | 2.90 (1.1) | 3.38 (1.0) | 0.002 |
| Like to be tested for AD with CT-scan or MRI | 2.85 (1.2) | 3.02 (1.0) | 0.273 |
| Like MD to examine me for AD | 3.16 (1.1) | 3.57 (0.9) | 0.009 |
| Be motivated to have a healthier lifestyle | 3.65 (0.9) | 3.51 (0.8) | 0.254 |
| More willing to participate in research about this disease | 3.80 (0.9) | 3.75 (0.7) | 0.656 |
| Stigma score (SD) | 32.9 (12.1) | 37.5 (10.3) | |
| Would not want my family to know | 1.99 (0.8) | 2.19 (0.7) | 0.059 |
| Feel humiliated by my family members and/or others who would treat me poorly or laugh at me | 2.07 (0.9) | 2.27 (0.8) | 0.101 |
| No longer be taken seriously | 2.58 (1.0) | 2.87 (1.0) | 0.036 |
| Be considered stupid and unable to do things | 2.07 (0.8) | 2.38 (0.8) | 0.011 |
| Be ashamed or embarrassed | 2.27 (0.9) | 2.41 (0.8) | 0.265 |
| Give up on life | 1.96 (0.7) | 2.00 (0.6) | 0.702 |
| My doctor would not provide the best care for my other medical problems | 2.17 (0.7) | 2.23 (0.7) | 0.540 |
| My doctor and other health professionals would not listen to me | 2.28 (0.8) | 2.39 (0.7) | 0.323 |
| Be concerned that my health insurance company would find out | 2.76 (1.1) | 3.05 (0.9) | 0.050 |
| Be concerned that my employer would find out | 2.99 (1.1) | 3.23 (1.0) | 0.114 |
| Negative Impact on Independence score | 47.6 (16.9) | 54.0 (11.4) | |
| Not be able to get health insurance | 2.69 (0.9) | 3.13 (0.7) | <0.001 |
| Not be able to get life insurance | 2.93 (1.0) | 3.26 (0.7) | 0.013 |
| Not be able to get long-term care insurance | 3.21 (1.0) | 3.29 (0.7) | 0.543 |
| Lose my home | 2.38 (0.9) | 2.65 (0.8) | 0.037 |
| Be living in a nursing home | 2.59 (1.0) | 2.91 (0.9) | 0.021 |
| Lose my driver's license and other privileges | 3.63 (0.9) | 3.71 (0.6) | 0.480 |
| Suffering score (SD) | 61.6 (18.5) | 55.9 (14.5) | |
| Family would suffer financially | 3.36 (1.2) | 3.06 (1.0) | 0.051 |
| Family would suffer emotionally | 3.91 (0.8) | 3.67 (0.8) | 0.032 |
| Be depressed | 3.40 (1.0) | 3.13 (0.9) | 0.051 |
| Be anxious | 3.19 (1.1) | 3.10 (0.8) | 0.538 |
*
p is based on a bivariate comparison using t-test