Table 2.

Median Phe values (range) and % Phe values above recommended range

	Measurement	Pre-study	Study	P-value (pre-study vs study)
Group 1	Median Phe value (μmol/L)	336 (198-1330)	408 (200-1438)	0.093
Group 1	% Phe values above rec. range	44%	49%	0.13
Group 1 < 10 years	Median Phe value (μmol/L)	273 (198-298)	295 (200-317)	0.46
	% Phe values above rec. range	15%	19%	0.35
Group 1 ≥ 10 years	Median Phe value (μmol/L)	599 (231-1330)	615 (271-1438)	0.16
	% Phe values above rec. range	57%	63%	0.16
Group 2	Median Phe value (μmol/L)	366 (144-1201)	381(173-1367)	0.96
Group 2	% Phe values above rec. range	48%	52%	0.40

Group 1 = online availability (n = 20)

Group 2 = usual procedure (n = 16)