Table 5.

Community Consultation Goals and Community-Based Participatory Research

CC Ethical Goal13	Definition	CBPR strategy14	CAR Project Example
Enhanced protection	Identifying risks for individuals & communities not previously known & suggesting potential protections	Integrated sources of knowledge	Each CAR represents unique populations & concerns relevant to current EFIC study
Enhanced benefit	Identifying enhanced benefits to participants, population & community	Achievement of common goals	Ongoing education to CARs which facilitate dissemination into their target communities Community concerns are quickly addressed, education is formatted & disseminated in community context
Legitimacy	Giving parties with an interest in the research opportunity to express concerns when changes can be made	Active engagement and shared decision- making Integrated sources of knowledge Multiple channels of dissemination	Communications are designed by CARs for their communities CARs “hosted” community consultation events within their communities Flyers and brochures distributed directly within communities
Shared responsibility	Consulted communities may share some moral responsibility and take on some aspects of research	Active engagement and shared decision- making Iterative data collection & analysis	Bi-directional communications about the study are on ongoing Attendance at meetings is increased which engages community members to actively think about the research study and its impact

CC = community consultation; CBPR = community-based participatory research; CAR = community advocates for research; EFIC = exception from informed consent