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. Author manuscript; available in PMC: 2012 May 1.
Published in final edited form as: J Hosp Palliat Nurs. 2011 May 1;13(3):142–150. doi: 10.1097/NJH.0b013e31820ce15e

Table 1.

Spousal Palliative Care Needs in Heart Failure

Exacerbation/Times of Medical Instability Times of Medical Stability
Informational Needs
  • Information for immediate decisions

  • Treatment options

  • Advance Directives

  • Information for future planning (legal documents, advance directives)

  • Information for day-to-day caregiving decisions

  • Management of new treatments and medications

  • Diet management

Financial issues
  • Travel and lodging expenses

  • Lost income/job- work absence

  • Patient insurance issues

  • Cost of medications

  • Lost income - missing work for appointments

  • Cost of travel for appointments

  • Medication expenses

  • Underinsured patients/spouses

  • Unmet household expenses

  • Navigating governmental systems (disability, Medicare-Medicaid)

Psychosocial Issues
  • Family conflicts increase

  • Availability of family/social support

  • Role change

  • Family and/or marital conflict

Physical Issues
  • Unaddressed medical needs

  • Stress

  • Exhaustion

  • Concurrent health problems

  • Health problems that limit caregiving ability