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. Author manuscript; available in PMC: 2012 Jul 1.
Published in final edited form as: Cancer J. 2011 Jul-Aug;17(4):222–230. doi: 10.1097/PPO.0b013e318227c811

Table 1.

Supporting behavioral needs across the cancer continuum from within Healthcare.

Cancer Control Goal Healthcare Informatics Systems
Prevention
  • Promote health protective lifestyle

  • Offer support services for behavior change

  • Personalize communication based on molecular, genetic, behavioral profile

  • Provide educational materials through patient portals, “information prescriptions”

  • Embed evidence-based support applications tethered to patient data; link to services

  • Maintain an ongoing personalized prevention plan, informed by genetic tests, biomarker assays, personal history, and patient- contributed input.

Early detection
  • Ensure adherence for recommended screenings

  • Promote informed decision making

  • Interpret findings from self-vigilance

  • Ensure adherence to follow-up plan

  • Develop profile-driven “reminder systems” to prompt healthcare team and patient

  • Create user-friendly decisional architectures to prompt action in line with patient values

  • Offer self-paced interpretative information online with inquiry capability to care team.

  • Offer escalating support to patient and care team to remove barriers, incent adherence

Diagnosis
  • Coordinate tests, reduce financial/invasive burden to patient

  • Support timely, sensitive communications

  • Offer psychosocial support services

  • Build data sharing and secure messaging tools to facilitate timely transfer of data for referrals. Perform systems analysis to reduce burden.

  • Conduct user-testing on methods for communicating diagnostic results to patients.

  • Offer easy access to support services through online service-request functions.

Treatment
  • Organize a treatment plan that is safe, effective, and congruent with patient values

  • Facilitate decision making throughout course of treatment

  • Control pain, monitor for side effects

  • Facilitate social support

  • Create a persistent, transparent version of the treatment plan that can be shared easily with the patient and members of the broader caregiving team.

  • Offer 24 X 7 access to supportive information relevant to the treatment plan; offer communication channels for advice.

  • Build mechanisms for ubiquitous connectivity between the patient and care team.

  • Expand system coverage to include the patient’s family.

Survivorship
  • Prevent recurrent & new cancers, late effects

  • Monitor for cancer spread; assess for psychosocial late effects

  • Intervene for consequences of cancer and its treatment

  • Coordinate between specialists and primary care providers

  • Personalize prevention recommendations to take into account adjusted risk.

  • Establish a monitoring plan that can sustain surveillance triggers reminders across the full system of care.

  • Include accountability tools, checklists and reminders systems to ensure treatment plan fulfillment.

  • Enable ability to update survivorship care plan and to retain historical revisions.

End of life
  • Preserve dignity, quality of life

  • Offer palliative care in accordance with patient’s values

  • Offer bereavement counseling; attend to family’s social, financial, and legal needs

  • Organize system around patients’ needs for autonomy and personal connections.

  • Establish a reporting channel for monitoring palliative care needs; expand connectivity to include ordering capacity for pain control.

  • Offer linkages to additional support services through electronic messaging, and service fulfillment.