TABLE I.

Characteristics of Sample

Subject ID number	Age	Ethnicity	Marital status	Family history breast cancer	Family history ovarian cancer	Disease status	Year of diagnosis	Surgical treatment	Has children	Wants children	Had genetic testing	Timing of testing	Test results	Decision on prophylactic surgery
1	24	W	S	Mother	Negative	No CA	N/A	N/A	No	UNK	No	N/A	N/A	N/A
2	66	W	D	Negative	Negative	BR CA	2002	Lumpectomy	Yes	N/A	No	N/A	N/A	N/A
3	46	W	S	Grandmother; three maternal great aunts; maternal great cousin	Negative	BR CA	2002	Lumpectomy followed by bilateral mastectomy	No	UNK	Yes	After diagnosis	Negative	N/A
4	44	W	S	Maternal grandmother; maternal great aunts	Negative	BR CA	1999; 2002	Bilateral mastectomy	No	No	Yes	After diagnosis	BRCA	Trying to decide on prophylactic oophrorectomy
5	27	W	S	Negative	Negative	BR CA	UNK	Mastectomy	No	UNK	Yes	After diagnosis	Negative	N/A
6	39	W	M	Negative	Maternal grandmother	BR CA	2003	Mastectomy	Yes	N/A	Yes	After diagnosis	BRCA2	Decided on prophylactic oophrorectomy but undecided on prophylactic mastectomy
7	42	W	S	Mother’s first cousins	Negative	BR CA	2000	Lumpectomy	No	Yes	No	N/A	N/A	N/A
8	46	W	M	Negative	Negative	BR CA	1994	Lumpectomy	Yes	N/A	Yes	After diagnosis	BRCA1	Already had prophylactic oophrorectomy; trying to decide on prophylactic mastectomy
9	31	W	S	Mother; maternal aunt; paternal aunt	Negative	BR CA	1995	Mastectomy	No	Yes	Yes	After diagnosis	BRCA1	Decided against oophrorectomy
10	49	W	S	Great aunt	Negative	BR CA	1997	Lumpectomy	No	UNK	Yes	After diagnosis	Negative	N/A
11	49	W	D	Maternal grandmother; maternal cousin; maternal aunt	Negative	BR CA	2002	Double lumpectomy	Yes	N/A	No	After diagnosis	N/A	N/A
12	54	W	S	Mother; paternal aunt	Negative	BR CA	1999	Mastectomy	No	UNK	No	N/A	N/A	N/A
13	37	W	M	Mother; maternal aunt	Mother; maternal aunt	No cancer	N/A	N/A	No	Unsure	Yes	Asymptomatic testing	Positive	At some point will; need to address issue as whether or not have children before having oophrorectomy
14	43	W	S	Mother; maternal great aunt	Negative	BR CA; OV CA	1991; 2001; 2003	Bilateral mastectomy and bilateral oophrorectomy	No	Yes	Yes	After diagnosis	BRCA1	Already had bilateral mastectomy and bilateral oophrorectomy due to cancer
15	46	W	S	Paternal aunt; sister	Paternal grandmother	No cancer	N/A	N/A	Yes	N/A	No	N/A	N/A	Wants prophylactic mastectomy due to high concern
16	late 20s	A	S	Maternal aunt	Negative	No cancer	N/A	N/A	No	UNK	No	N/A	N/A	N/A
17	39	AA	M	Mother	Negative	No cancer	N/A	N/A	Yes	N/A	No	N/A	N/A	N/A
18	37	AA	S	UNK	UNK	No cancer	N/A	N/A	Yes	N/A	No	N/A	N/A	N/A
19	64	AA	D	Mother	Negative	BR CA	2003	Lumpectomy	Yes	N/A	No	N/A	N/A	N/A
20	32	Other	D	Paternal uncle; paternal aunt	Negative	No cancer	N/A	N/A	No	UNK	No	N/A	N/A	N/A
21	49	L	S	Negative	Negative	BR CA	1990	Mastectomy	Yes	N/A	Yes	After diagnosis	BRCA2	UNK
22	38	AA	S	Mother; maternal grandmother; two maternal aunts; maternal cousins	Negative	No cancer; had mass found to be benign	N/A	N/A	Yes	N/A	No	N/A	N/A	N/A
23	56	L	S	Sister	Negative	BR CA	2003	Lumpectomy	Yes	N/A	Yes	After diagnosis	Negative	N/A
24	66	W	D	Negative	Negative	BR CA	1975	Mastectomy	Yes	N/A	Yes	After diagnosis	Negative	N/A
25	36	W	S	Paternal aunt; paternal cousin; maternal grandmother	Negative	No cancer	N/A	N/A	No	No	Yes	Asymptomatic testing	Negative	N/A
26	44	W	M	Maternal grandmother; mother’s maternal first cousin	Negative	No cancer	N/A	N/A	UNK	UNK	Yes	Asymptomatic testing	Negative	N/A
27	43	A	S	Negative	Negative	BR CA	2005	Lumpectomy	No	Unsure	Yes	After diagnosis	BRCA1	Trying to decide on prophylactic oophrorectomy
28	55	W	M	Negative	Negative	BR CA	2002	Bilateral mastectomy	Yes	N/A	Yes	After diagnosis	Negative	N/A
29	46	W	M	Negative	Negative	BR CA	UNK	Mastectomy	Yes	N/A	Yes	After diagnosis	Negative	N/A
30	43	AA	S	Sister; maternal aunt; paternal cousin	Negative	No cancer	N/A	N/A	No	Yes	Yes	Asymptomatic testing	Indeterminate genetic variances	N/A
31	68	W	M	Daughter	Negative	No cancer	N/A	N/A	Yes	N/A	Yes	After daughter’s diagnosis	Negative	Plans to have bilateral oophrorectomy
32	65	AA	S	Maternal aunt; niece	Negative	BR CA	1995; 2002	Lumpectomy	Yes	N/A	No	N/A	N/A	N/A