Table 3.
Themes | DNA test | Family history assessment | Both tests |
---|---|---|---|
Identification of people at risk | |||
Diabetes is not severe enough | Can be assessed quickly | Can identify people at risk | |
Diabetes family history is unknown | Only for high risk individuals | ||
No use for people with no family history | |||
There are other risk factors for diabetes | |||
Positive and negative health outcomes | |||
Motivation to engage in healthy behaviour |
The test is a deliberate decision | There is an example of diabetes patients within the family | Genetic risk cannot be influenced |
Risk is certain | People with a family history are already aware of the risk | False reassurance | |
Psychological impact | Worry for and about children | Little or no psychological harm | |
Worry about diabetes risk | |||
Family issues | |||
Influence on family relationships |
Opens family discussion about diabetes and provides support | ||
Some do not want to be informed, disturbs family relations | |||
Someone in the family will be blamed | |||
Informing family members | Obligation to disclose risk information to family members | ||
Allows to raise children more consciously | |||
Autonomy | |||
Not performed unasked for | Can be offered to everyone | Risk tests should be voluntary | |
No tests on embryos or children | |||
Informative before having children | |||
Informational privacy | |||
Discrimination | Discrimination by insurance company or employer | ||
Sensitive data | Ownership of data | Private information | |
No trust in relatively new test |