Table 4.
Follow-up survey completion by patient characteristics, AYA HOPE Study
| Survey | Completed | Non-Response | Deceased | Lost to follow-up | ||||
|---|---|---|---|---|---|---|---|---|
| N | % | N | % | N | % | N | % | |
| Age at diagnosis (years) | ||||||||
| 15–19 | 63 | 94.0% | 1 | 1.5% | 0 | 3 | 4.5% | |
| 20–24 | 81 | 87.1% | 8 | 8.6% | 2 | 2.2% | 2 | 2.2% |
| 25–29 | 114 | 85.1% | 13 | 9.7% | 5 | 3.7% | 2 | 1.5% |
| 30–34 | 103 | 89.6% | 6 | 5.2% | 5 | 4.3% | 2 | 1.7% |
| 35–39 | 104 | 90.4% | 7 | 6.1% | 3 | 2.6% | 1 | 0.9% |
| SEER Race/ethnicity | ||||||||
| Hispanic | 83 | 86.5% | 6 | 6.2% | 3 | 3.1% | 5 | 5.2% |
| Non-Hispanic White | 298 | 89.8% | 22 | 6.6% | 8 | 2.4% | 4 | 1.2% |
| Non-Hispanic Black | 35 | 83.3% | 4 | 9.5% | 2 | 4.8% | 1 | 2.4% |
| Other/Unknown | 49 | 90.7% | 3 | 5.6% | 2 | 3.7% | 0 | |
| SEER Sex | ||||||||
| Male | 287 | 86.4% | 26 | 7.8% | 11 | 3.3% | 9 | 2.7% |
| Female | 178 | 92.7% | 9 | 4.7% | 4 | 2.1% | 1 | 0.5% |
| Cancer sitea | ||||||||
| ALL | 18 | 85.7% | 1 | 4.8% | 1 | 4.8% | 1 | 4.8% |
| NHL | 113 | 86.3% | 9 | 6.9% | 7 | 5.3% | 2 | 1.5% |
| HL | 130 | 91.5% | 10 | 7.0% | 1 | 0.7% | 1 | 0.7% |
| Germ cell | 181 | 88.3% | 15 | 7.3% | 4 | 2.0% | 6 | 2.9% |
| Sarcoma | 23 | 92.0% | 0 | 2 | 8.0% | 0 | ||
| Education | ||||||||
| Less than high school diploma | 51 | 87.9% | 3 | 5.2% | 3 | 5.2% | 1 | 1.7% |
| Completed high school | 79 | 86.8% | 8 | 8.8% | 1 | 1.1% | 3 | 3.3% |
| Some college/vocational training | 123 | 89.1% | 8 | 5.8% | 4 | 2.9% | 3 | 2.2% |
| Associate degree | 47 | 88.7% | 5 | 9.4% | 1 | 1.9% | 0 | |
| College graduate | 119 | 90.8% | 7 | 5.3% | 4 | 3.1% | 1 | 0.8% |
| Post-graduate education | 45 | 88.2% | 3 | 5.9% | 2 | 3.9% | 1 | 2.0% |
| Missing | 1 | 50.0% | 0 | 0 | 1 | 50.0% | ||
| Census:% HS education (age 25 or older) | ||||||||
| Not Available | 1 | 100.0% | 0 | 0 | 0 | |||
| <75% | 121 | 87.1% | 9 | 6.4% | 5 | 3.6% | 5 | 3.6% |
| 75–90% | 182 | 88.3% | 14 | 6.8% | 7 | 3.4% | 3 | 1.5% |
| 90%+ | 161 | 90.4% | 12 | 6.7% | 3 | 1.7% | 2 | 1.1% |
| Census: median family income | ||||||||
| Not Available | 1 | 100.0% | 0 | 0 | 0 | |||
| <$45,000 | 131 | 84.0% | 13 | 8.3% | 6 | 3.8% | 7 | 4.5% |
| $45,000–$65,000 | 177 | 89.8% | 14 | 7.1% | 5 | 2.5% | 1 | 0.5% |
| $65,000+ | 156 | 91.8% | 8 | 4.7% | 4 | 2.4% | 2 | 1.2% |
| SEER Registry | ||||||||
| Northern California | 108 | 87.8% | 9 | 7.3% | 2 | 1.6% | 4 | 3.3% |
| Los Angeles | 81 | 85.3% | 7 | 7.3% | 4 | 4.2% | 4 | 4.2% |
| Seattle-Puget Sound | 76 | 89.4% | 6 | 7.1% | 3 | 3.5% | 0 | |
| Louisiana | 60 | 85.7% | 6 | 8.6% | 4 | 5.7% | 0 | |
| Greater California | 57 | 96.6% | 0 | 1 | 1.7% | 1 | 1.7% | |
| Metropolitan Detroit | 49 | 94.2% | 1 | 1.9% | 1 | 1.9% | 1 | 1.9% |
| Iowa | 34 | 85.0% | 6 | 15.0% | 0 | 0 | ||
a ALL acute lymphocytic leukemia; HL Hodgkin lymphoma; NHL non-Hodgkin lymphoma