Table 2.

Attitudes toward HHT and genetic testing (N=119)

	Agree		Neutral/Disagree		Don’t Know
	N	%	N	%	N	%
HHT is a very serious disease	115	96.6	4	3.4	0	0
Getting good medical care can make a big difference in how HHT will affect a person	118	99.2	1	0.8	0	0
I know a lot about genetic testing for HHT	49	41.2	61	51.3	9	7.6
Genetic testing for HHT is very expensive	67	56.3	15	12.6	37	31.1
Medical insurance usually covers the cost of genetic testing	24	20.2	59	49.6	36	30.3
People who have a positive genetic test for HHT will have a hard time keeping their health insurance coverage	32	26.9	51	42.9	36	30.3
People who have a positive genetic test for HHT will have a hard time buying life insurance	58	48.7	25	21.0	36	30.3
If the genetic marker for HHT is known in a family, relatives with signs of HHT should get tested for the marker	105	88.2	11	9.2	3	2.5
If the genetic marker for HHT is known in a family, relatives without signs of HHT should get tested for the marker	93	78.2	21	17.6	5	4.2
People who have genetic testing for HHT should encourage their relatives to get tested	110	92.4	7	5.9	2	1.7
Primary care doctors don’t know how to arrange for genetic testing for HHT	80	75.6	19	7.6	20	16.8