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Responses to open-ended question regarding barriers to genetic testing for HHT
| Barrier | # citing barrier |
|---|---|
| Cost of testing | 68 |
| Access/inconvenience | 39 |
| Discrimination | 35 |
| Emotional concerns | 33 |
| Lack of knowledgeable providers | 21 |
| Lack of awareness/understanding | 17 |
| Potential for error/misdiagnosis | 12 |
| Uncodeable | 19 |
