Table 3.
Average medical consumption and average costs per patient for adult Pompe patients only receiving supportive care
| Respondents using service, n (%) | Average units used per patient, n (SD) | Average annual cost per patient (€) (n = 80) | Range of per patient costs (€) | |
|---|---|---|---|---|
| Hospital care | 313 | 0–6,303 | ||
| Patients hospitalized | 12 (15) | |||
| Number of hospitalizations (if hospitalized) | 2 (1.2) | |||
| Duration per hospitalization (nights) | 4 (4.4) | |||
| Intensive care | 808 | 0–18,467 | ||
| Patients hospitalized | 7 (9) | |||
| Number of hospitalizations (if hospitalized) | 2 (1.1) | |||
| Duration (nights; if hospitalized) | 5 (3.3) | |||
| Nursing home | 3 (4) | 2,571 | 0–82,454 | |
| Ambulatory care | ||||
| Hospital day visits | 71 (89) | 5 (6.1) | 372 | |
| GP visits | 46 (58) | 2 (1.9) | 36 | |
| Physiotherapy | 32 (40) | 18 (39.2) | 473 | |
| Other paramedical | 27 (34) | 4 (9.7) | 162 | |
| Total costs | 1,043 | 0–7,217 | ||
| Home care | 31 (39) | 7,011 | 0–85,987 | |
| Home care (h/week) | 8 (18.4) | |||
| Medication | 198 | 0–1,257 | ||
| Patients on medication | 42 (53) | |||
| Number of medicines (if on medication) | 4 (3.8) | |||
| Other medical costs | ||||
| Tests and procedures | 71 (89) | 7 (4.3) | 750 | |
| Respiratory support | 26 (33) | 574 | ||
| Medical devices | 56 (70) | 411 | ||
| Number of devices (if using devices) | 3 (2.0) | |||
| Total costs | 1,735 | 0–5,020 | ||
| Overall | 13,679 | 0–167,935 | ||