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HRQoL and total costs for adult Pompe patients only receiving supportive care
| Number (%) | EQ-5D utility score (SD) | Number (%) | Total costs (€) | |
|---|---|---|---|---|
| Overall (SD; min–max) | 72 | 0.72 (0.18; 0.17–1.00) | 80 | 22,475 |
| Disease duration | ||||
| ≤5 years | 31 (43) | 0.74 (0.15) | 33 (42) | 13,922 |
| 6–15 years | 18 (25) | 0.70 (0.16) | 19 (24) | 26,290 |
| >15 years | 22 (31) | 0.69 (0.23) | 27 (34) | 30,736 |
| Ambulatory support | 37 (51) | 0.67 (0.21) | 44 (55) | 33,246 |
| Respiratory support | 20 (28) | 0.61 (0.26) | 25 (32) | 41,485 |
